guess I'm getting IVSM again
 

my right eye has gotten worse and worse as the week has gone on. This morning, I couldnt see anything but some light and shadow out of my right eye when I got up this morning.

I've got really really bad vertigo now, and my eye STILL HURTS! It's hurt constantly since March 23. Nothing I've taken for it has helped. (tried tramadol the other day...that just made me drowsy)

I called my eye doctor, he told me to call the neuro and ask about steroids, called the neuro and asked about the steroids and he said that it might shorten the flare, and even tho we talked about steroids earlier this week and had originally decided to not do them, when I told him the tramadol he gave me didnt work, he thought that maybe the IVSM would probably help the eye pain.

I'm a little scared of having IVSM this time around. Because I'm still traumatized from the oral pred that I had over Xmas that made me a bit...crazy. But the not being able to see is making me a lot more freaked out. Just a little scared that I'll still be half blind with a side of the crazies to go with it. I dont want a side of the crazies.

just wish the MS would leave me alone. kinda disappointed that I'm apparently NOT one of those people with MS that seem to be able to go years between flares. I apparently only go weeks/months between flares.

guessing I probably wont be able to start the IVSM till monday. Just have to wait for the regular doctor to call me back and then I guess the phone tag with the infusion center will start up after that.

I'm sorry things aren't any better. I hope the IVSM will help. Seems like we have to choose between the lesser of two evils when it comes to our med options. :rolleyes: Maybe they can get things started before Monday. :hug:

Hang in there Erin. Maybe the Calvary/IVSM will save your day..:hug::hug:

bummer.......
 

I wonder what Dr.s think of using pulse steroids prophylactically. Clearly, I am not a doctor and have never played one on TV (lol)

Seems like the steroids are a more 'regular' part of your overall treatment regime (from occasionally reading your posts)

Just thinking of it as switching from a reactive response to something proactive. I dunno.

Erin, if you dont handle solumedrol well, maybe ask for Athcar gel. I dont handle solumedrol well at all and refused to take it again and my neuro said we could try Athcar gel instead. He said the side effects are not as severe as the solumedrol but the effectiveness is the same. I get extremely violent on steroids so I have to stay clear of them. I have not tried the gel yet, but I was given that as an option.

Here's a former thread about Acthar.........http://neurotalk.psychcentral.com/sh...ght=Acthar+Gel

Guess what?

My regular doctor rocks!!

I didn't think I'd be able to get the ivsm before Monday, well I'm sitting here posting on my iPad in the infusion center. Little less than half the first bag left. Whoohoo!

When regular doc couldnt get the usual place set up for me before Tuesday, he tried a different one...that seems to be open whenever someone needs something infused. I got here at 430 and was hooked up by 5. Yay!

Nasty taste in my mouth and I'm starving to death. The nusrse was just eating a venison burrito (he wouldn't share!) so I can't wait till this is done so I can go find food. Not sure what to eat. Don't want to eat a bunch of salt.

Hope this works!!