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-   -   PN affecting face? (https://www.neurotalk.org/peripheral-neuropathy/168566-pn-affecting.html)

januarybabe 04-22-2012 02:35 PM

PN affecting face?
 
Does anyone here have PN in face? I have PN over many parts of body in arms legs, abdomen, ribs. A lot of it feels like bruises. I was washing my face and I could feel that bruised feeling under eye. I worry about it taking over my body. I pick up on pain easily sometimes. It might even be feelings I would otherwise ignore. I am on Neurontin and Tramadol.

glenntaj 04-23-2012 06:11 AM

I've certainly had--
 
--facial neuropathy symptoms, but they've fallen more into the category of tingling and other parastheses, some occasional transient numbness in small areas, and some infrequent allodynia early in my neuropathic process (nerve pain from non-painful stimuli).

There are certain neuropathies and neuroopathies in which facial symptoms are prominent--people with Sjogren's and celiac/gluten sensitivity do report this. And, of course, trigeminal neuralgia is a well-recognized entity.

lindsayjane 04-23-2012 07:01 AM

yes
 
I have peripheral neuropathy in my face. It started out as pain in my left cheek and moved to my eye. Sometimes in my jaw. Its mostly just tingles now in my lips and cheeks.

Lindsay

januarybabe 04-23-2012 07:24 AM

I Live in fear for future. The pain in face is minor. Don't know what it would be like without pain pills. Mrs D mentioned in another post about pain working neural pathways and more easily perceiving pain. It seems like it feeds upon itself. It seems like as my pain has spread over body. However, as it has spread it seems to be less in any given area.

lindsayjane 04-23-2012 11:00 AM

me too
 
Quote:

Originally Posted by januarybabe (Post 872597)
I Live in fear for future. The pain in face is minor. Don't know what it would be like without pain pills. Mrs D mentioned in another post about pain working neural pathways and more easily perceiving pain. It seems like it feeds upon itself. It seems like as my pain has spread over body. However, as it has spread it seems to be less in any given area.

I also live in fear...well not as much as I used to. I used to cry a lot everyday worrying about what was going to happen because my PN moves around a lot from place to place...the constant change makes me fear that something bad is going to happen. It also doesn't help that the doctors can't measure my condition on any of their tests. Ever since I found this forum, my crying spells have lessened. I read this forum every night before I go to sleep..it seems to help. I have realized that fear makes it worse...because constant stress puts you in that "fight or flight" stress response and a lot of normal body functions shut down. I have found that finding a physical therapist that you can go to on a weekly basis helps. I used to go the chiropractor 1-3 times a week. Now I am doing yoga and myofacial release therapy. I take a multi vitamin with lots of B12 and not that over the counter stuff either...because it doesn't dissolve (My chiro showed me an x-ray of an undissolved 1 a day in a person's colon!) I want to try that l- theanine that Mrs. D recommends for stress and trouble sleeping. I'm also starting to think that I may have a gluten sensitivity that is causing all of this. I just try to stay busy to keep my mind off of this constant thing that is happening in my body...and I'm trying to fight it (whatever it is) and be proactive. I hope you start feeling better soon..I don't know about you, but I have good days and bad.


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