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-   -   What IS THE REAL TRUTH (https://www.neurotalk.org/parkinson-s-disease/168580-real-truth.html)

ol'cs 04-22-2012 08:56 PM

What IS THE REAL TRUTH
 
IS THIS COMPLETELY NON_BIASED AND TRUE
http://www.georgetownuniversityhospi....cfm?id=555881
If so, then maybe i'll get it done. I hate dystonia too much, it "steals your life when "an episode hits big time.
Also, what's the buzz with that cane that is supposed to "straighten out" muscle fibers, at "trigger points"" in the muscle fascia. With us parkies, i thought we couldn't talk to or effectively get our muscles to do what they do in "normal" people, due to the loss of the electrical contacts established at actin/myosyn junctions, so, no talk no fix , for us. HAS anybody ever shown that PD can REALLY be manipulated to be "something that is barely affecting us" Can you REALLY abolish RLS, and other dystonia and dyskinesia, using such simple techniqes, can anyone benefit significantly better, from EVERYTHING that a "normal YPWP" experiences?
I think we've come a long way since the late nineties, but there must be a way of re-establishing the long dendrites that carry muscle motion signals via axons in the tensor-flexor, co-ordinated substantia nigra neurons in the brain- to tip of toe nerve movement of muscles. Methinks a cure is as far away as fusion power, about 20 years.

made it up 04-22-2012 10:20 PM

Quote:

Originally Posted by ol'cs (Post 872481)
IS THIS COMPLETELY NON_BIASED AND TRUE
http://www.georgetownuniversityhospi....cfm?id=555881
If so, then maybe i'll get it done. I hate dystonia too much, it "steals your life when "an episode hits big time.
Also, what's the buzz with that cane that is supposed to "straighten out" muscle fibers, at "trigger points"" in the muscle fascia. With us parkies, i thought we couldn't talk to or effectively get our muscles to do what they do in "normal" people, due to the loss of the electrical contacts established at actin/myosyn junctions, so, no talk no fix , for us. HAS anybody ever shown that PD can REALLY be manipulated to be "something that is barely affecting us" Can you REALLY abolish RLS, and other dystonia and dyskinesia, using such simple techniqes, can anyone benefit significantly better, from EVERYTHING that a "normal YPWP" experiences?
I think we've come a long way since the late nineties, but there must be a way of re-establishing the long dendrites that carry muscle motion signals via axons in the tensor-flexor, co-ordinated substantia nigra neurons in the brain- to tip of toe nerve movement of muscles. Methinks a cure is as far away as fusion power, about 20 years.

When I clicked on the article it showed a patient and her comments plus hospital where she was treated commenting on DBS is that what you meant?

ol'cs 04-22-2012 10:32 PM

after reading this
 
http://www.neurology.umn.edu/prod/gr.../med_32171.pdf

with all the disclaimers. i think not. I just have this "gut feeling" that i am a poor candidate for DBS. I think ill go from a fall, and DBS isn't a stellar procedure for "fallers" like me. lol!


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