Buyer Beware
 

There is no one verifiable quick fix for RSD/CRPS. There are dozens of medications and procedures to try.

I have attained a quality of life that is peaceful, after many years of suffering and misery. I am not in remission, and continue to work toward it. In the meantime, I'm living my life.

I've learned to adapt and use strategies, meds, and procedures that work for me. MANY of those things were suggestions I learned from this board, for which I am very thankful.

When I recommend that others try out ideas that have worked for me, I always make the assumption that the patient discuss it with their own doc, and even then move forward carefully to test things out. Perhaps that is an assumption I should never make. I've learned to be very in tune with my body, above all else. Unfortunately, with RSD, are bodies give us odd feedback at times, so this is a process that takes time.

Of late, there has been quite a bit of pressure exerted by certain members to try the treatment some of them have experimented with while naysaying all other courses of treatment. This baffles me for several reasons, the most striking of which is that any claim that a procedure is 100% safe and has no side effects rings untrue. Docs made those same claims about phen fen, until the combo started destroying heart valves. I'm not claiming I wouldn't potentially try ANY treatment that is found to be effective, but I would do it under a doctor's care.

If you find someone's advice here on NT that appeals to you, you can always pull up their older posts to explore other suggestions they've had, or to get more info about their journey.

The longer a person has had RSD, does not make them an expert. The simplest definition is that it means we've failed to reach remission. I'm learning everyone follows their own path, in their own time. Those that have had RSD for many years, are envious of those newly diagnosed because you do have the greatest opportunity for remission and we don't want you to squander it. But, it is your health, and your decisions at the end of the day.

I wish remission for every RSD patient someday. And until that day, I wish each one of you the peace to live your life as well as possible.

well said. and just to offer an add in to this. remember RSD/CRPS acts differently for each person so it of course will have the same effect in treatment so what MAY work for on possibly won't work for others. we state our experience here and results to us (making this advice equivalent to an opinion not fact. good luck in your search for remission and less pain and remember we are support not doctors.