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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Please Don't read Unless You Have A wide Ranged Mind (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/16942-please-dont-read-unless-wide-ranged-mind.html)

buckwheat 04-04-2007 11:34 AM

Please Don't read Unless You Have A wide Ranged Mind
 
Forget it, to ever probem their has got to be a solution. i choose to delete.

Jomar 04-04-2007 12:22 PM

You had me so curious!!
do you want me to delete this whole thing?

artist 04-04-2007 12:56 PM

Yeah! Me too! - hey, Roz, you could sell newspapers with headlines like that.. :D
(what was it, anyway?? Just whisper, you can tell me....)

all the best :p

buckwheat 04-04-2007 01:11 PM

Dear Jo,

Please try to understand I mean well.

I truly believe their are different roots to this RSD problem. I am getting treatment out of the box now. If I can get better maybe some can on this web. I have had RSD for over 5 years. I have always questioned WHY to all the MD's?

Sometimes what I write might not be everyone's interest, so that is why I delete it. Because their RSD problem is from a different source than mine. My life is a different situation as their's as well.

RSD is soo rough the SX are never ending. If I can get better maybe some other people can as well. Hugs, Roz

SallysMom 04-04-2007 02:38 PM

Buckwheat,

I care. I am here because of a daughter with Autism and Spiritual Support, but I have a couple of on line friends on another board who have RSD, and I recently lost a dear friend who had this terrible thing.

Anything you have to offer may help. Just like Autism, there are probably different causes and different solutions. If you have any ideas, write, please.

Judy

buckwheat 04-04-2007 02:57 PM

Dear Judy,

I have to leave for the Docs office. I will get back with you. Hugs, Roz

carose 04-04-2007 03:19 PM

Roz We all care!! What kind of treatment outside the box? Boxes are to confining, I know I am open to new ideas. I have a DR. that thinks a lot of people with many different diseases all have in common an infection that may not be the cause but makes the disease worse and harder to treat. Therefore, I am being treated with antibiotics, as well as nerve blocks and other meds. I have dystonia in my hand and only one other person in my support group deals with this, but they all care about how we are doing with our balled up hands. Just as we care, but can't relate to those in a wheelchair. What I'm trying to say is if you have anything that would like to share, please don't delete just because you do not think we would be interested. I am interested in everything I read here, even if it does not apply to me directly. :hug: CARose

Jomar 04-04-2007 04:37 PM

I'm all for hearing about alternative/outside the box treatments too - for many things.

But if you aren't ready to share yet that is fine too.
I'm excited for you - I hope it does work!

frogga 04-04-2007 09:59 PM

I am intrigued! I really want to know what this is about Roz..

also, as long as you aren't suggesting that RSD is 100% psychiatric and we should thus be placed in psychiatric care then I am very open to your suggestions.

I think most people realise that there are so many routes to this set of symptoms (I suppose that;s why it's a syndrome - a group of symptoms not a specific disease path).

Please tell!!!

Love, froggsy xxxxxxxxxx

buckwheat 04-04-2007 10:03 PM

Dear Judy,

Please check your PM. Your lovely child is in my heart. Hugs, Roz


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