P4P refugee *L* Hi New here sadly not new to CRPS
 

Hi, I'm hoping to find a new group.. Till it folded I did have a home at Physicians for Patients.. But that's gone.

Anyway.. I'm new here.. Bill's the name.. CRPS diagnosed in 2008.. though to hear my Workman's Comp insurance company and their paid IME flunky I'm just fine! Just need to know then one thing- Who's coating my hands & feet in gas and lighting me on fire? Yeah CRPS & I have become real buddies.. I mean who else is up all night with me 24/7 365 days a year?? Ohh yeah.. most everyone else with CRPS!

Seriously.. though I try never to be serious...CRPS takes care of the serious for me My CRPS is pretty much all over.. hands, feet, arms, legs, back.... Worse on my left side which sadly once was my dominant hand. My CRPS is anything but under control.. though between the methadone and hydrocodone for breakthrough pain (along with a bunch of "supporting" meds) I manage as best I can.. which means a little walking with help of a cane, a bit of shopping with help of a scooter, a lot of sitting/laying in bed.. and daily pain levels that average from 8 to 9...

Hopefully if my WC case ever gets heard I'll get a chance to fight the Ins Co. for a chance to try a inpatient Ketamine infusion.. as my Pain Dr says that's my last possible therapy that might help. You see I've had the blocks, and had a spinal chord stimulator implanted. I've also had a staph infection that found my implant a great place to grow in.. So far it's taken 2 hospital visits a year apart along with antibiotics through a pic line and still taking antibiotic pills 4x a day... The infection did a number on my lower back which along with the infection rules out a pain pump.
Still I try to keep a positive attitude why not? Depressions the easy way and no one with CRPS does anything easy..*L*

For those obsessed with stats.. I'm a 54yr old man I live in Northern Michigan shortly to relocate to Georgia
Hope to get to run into everyone here sooner or later... I'm up most of the time... sleeps another thing CRPS took away.. Thanks for having the site here and Low pain wishes for all

Hello Bill!
 

Just wanted to say WELCOME! :hug:

You're at a great place for support. There's lots of info to be had at the RSD forum and I see you've found your way over there.

I too suffer from the same dude who lights us on fire. :rolleyes:
Wish there were an easy way to 'retaliate'....but it just isn't happening!

Anyway, it's great to have you here at NT.
We're all in this together and the support really does make a difference.
It'll be great seeing you around!

Caring,
Rae
:grouphug:

Greeting!!