Could it be seizures?
 

My neurologist still seems to think what I'm experiencing is seizures. We haven't found a seizure medication yet that doesn't have a severely negative effect on me...so we don't know yet???

I guess it would make sense, since seizures can cause permanent brain damage.

I haven't experienced a full blown seizure and nobody has told me that I've had one...I do have some random tingling in my extremeties, mainly my head. Could those be seizures? I'm also still unable to handle watching TV without the part of my brain that controls my thinking and speech "seizing up" immediately. No convulsions, no twisting and turning or anything...Just brain fog, mild tremors and random tingling in extremeties.

I've had a clear EEG 3 times.

Could it be seizures??? Any thoughts on this???

Nick

Nick,

If it was seizures, the flashing lights and other stimuli they use during the EEG's would have shown the seizure.

You might ask your neuro if you can try phenobarbital. It will help you sleep and likely settle you down. It is a anti-seizure barbiturate but does not cause strong addiction problems. I have been on it long term twice. Once when I was 16 for 1 1/2 years and again when I was 19 for 6 months.

If you neuro does not know how to look at a VEP or AEP to see how much such stimuli effects your brain, you need to find someone who does.

A qEEG/AEP/VEP done by someone who truly understands them will be a big help.

I'll try doing some more research for a specialist in your area.

My best to you.

I still haven't heard anything back from Dr. Yucha.

I am very much interested in the AEP and VEP test. So, if you could find someone that would be willing to work with me, that would be great.

Nick,

Check out this place.
Michael and Leslie Newman
Neurofeedback and Counseling Associates
702-224-5222
Las Vegas, NV

SpaceCadet,

Personally, I'd recommend getting in to see an epileptologist. A neurologist with extensive experience dealing with only seizure disorders. There are many different types of seizures ~ 30+! Sometimes, an EEG doesn't detect abnormal electrical activity (if it's deep within the skull). That does happen.

Which medications have you tried? Personally, I've had dependency problems with phenobarbital which my neurologist increased to a rather high dosage in hopes of controlling my seizures. Didn't work very well for me, but it was the most successful med for me. I was hospitalized while taken off the med ~ to prevent major withdrawals.

Different meds work well for different people....that's how I look at it. I'm sorry that you've had such a difficult time ~ being uninsured and assaulted. What a horrible addition to the misery of TBI. I'll have to look and see if there are epileptologists in your area.

Best wishes!
Shezbut

Advanced Neurology Institute of Nevada
Daniel J. Broeske, M.D.
Board Certified Neurologist

3121 S. Maryland Pkwy.
Suite 408
Las Vegas, NV 89109
Tel: 702.733.8018

I didn't see any epileptologists in the Las Vegas area. But the two clinics mentioned do have extensive experience with brain injuries and related effects, so they might be an option for you!


Cleveland Clinic ~ Lou Ruvo Center for Brain Health
702-483-6000

You may want to try calling the Cleveland Clinic to see if you might be helped and assisted with payments, given your personal situation.

Hope this helps you!
Shezbut