Hi Just an update
 

Hi everyone, just wanting to update you and to let you all know how much l appreciate your help thus far on this wonderful forum.

So far my blood test results have shown elevated ACE levels and increased protein in my 24 hour urine test, not sure if being 5 days on menstrual cycle could have showed incorrect urine protein.

Had anther blood and urine test a few weeks after that and it showed normal level of protein in urine, but still showed an even higher ACE level, and l tested positive for P-anca. This is the only one l tested positive for out of the others in the group like C-anca, MPO Anca, and PR3 Anca all showed negative.

Thought maybe l could still have sarcoidosis or possible vasculitis. Not sure yet. One specialists said to me just because l have elevated P-Anca doesn't mean l have vasculitis. He said l would need something else show up in my blood to show l have vasculitis. So still frustrated not knowing what l actually have, so l can treat it.

My PN has completely stopped for now, so no burning feet or hands, the only thing l get every now and then is some very light vibrations around my feet and legs,but very light and not often.

Taking all supplements and l have just recently included Tumeric supplement as well, which seems to be helping immensely.
I just can't believe how much better l feel. I do have my days where l feel really tired and fatigue, but lately l have felt back to my normal self. But l can't get too comfortable as l don't' know what l have yet. Before l started taking my Tumeric supplement, l had sore knuckles and ankles and a sore upper back, around my spine area, and now it seems to have all gone away. I just cannot believe how quickly they helped, but then again, it could all come back just the same. Also, the other supplements l am taking as recommended by you guys, are fantastic.

Thanks so much.

Sue:)

I would be very careful with supplements if you are testing out
with potential kidney problems. That's what your recent tests suggest is possible.

You should have frequent renal panels to make sure your
creatinine levels are normal. And have doctor supervision.

Thanks so much will keep an eye on it. Seeing 2 specialists this week so hopefully will find out more.

The supplements l am taking are tumeric, Lipoic acid and L-Carnite. Hopefully none of these don't stimulate the immune system, because l think in my case I may need to suppress it.



Cheers Sue:)