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Pebbles 06-01-2012 07:04 PM
New to all this need advice
 
Hi Everyone,

I have recently been diagnosed with Partial Seizures by a neurologist. It was really quite by accident that I ended up having an EEG and going to this doctor. My primary physican was running an MRA for aneurysm (not because of symptoms, but because of family history)....long story short, this neurologist claims that I am having Partial Seizures and I don't even know it.

Now this doesn't sound right to me as I have absolutly zero symptoms...however he is now refusing to keep me as a patient (not that I want him as a doctor) because I will not take medication that he wants to prescribe. I don't want to without a second opinion. However, he is refusing to release my medical records to me....again this doesn't sound right to me.


Can anyone offer any advice. I am really confused by this...can you have a seizure and not know it?

Darlene 06-01-2012 11:27 PM
Nice to meet you!!
 
Pebbles,

:Wave-Hello: Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

You have came the right place for some assistance with epilepsy. I myself have had epilepsy since I was 10 years old. I too when going through a seizure I was unable to talk, seems I could form the words but unable to form my mouth to speak.

Check into the following forum, there are some fellow members there, including myself, to assist you:

Epilepsy:
http://neurotalk.psychcentral.com/forum11.html

On beginning a new medicine it takes a while to get into your blood stream. I was on Dilantin while I was a child, but was unable to control my seizures because I could not take enough. Although one medicine which someone may not help another.

Here are some suggestions I have for you. My advice to you is to see an Epileptologist (Dr. specializing in epilepsy) and go to an Epilepsy Center which are usually found at University Hospitals or Big hospitals. Often a person may vomit when having a seizure and it's all part of the seizure. Try taking vitamin B12 1000 mcg. once a day to help calm the nerves and this may help reduce your seizures. Afford being around bright flashing lights like in a theater. If you are watching a movie there closes your eyes to avoid the flashing.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

spedteach2002 06-02-2012 11:53 PM
Hello, I am very similar. I have an appointment to see a neuro June 12. I have had 2 abnormal EEG's that showed seizure activity at night. I do not recall ever having any seizures. I am divorced so don't know what I do in my sleep. The first time was found on accident. I had a sleep study because I have sleep apnea then my family doc ordered a sleep deprived eeg and that also showed one and I was using my bipap machine during the sleep portion so its not apnea related. Do they give meds for stuff like this? I don't know what to expect at the first appointment. I have a neuromuscular disease and I am on gabapentin for the nerve pain and its also a seizure medicine. However, still having the abnormal eeg's while on a high dose.

Jen

Pebbles 06-03-2012 05:13 PM
Quote:
Originally Posted by spedteach2002 (Post 885534)
Hello, I am very similar. I have an appointment to see a neuro June 12. I have had 2 abnormal EEG's that showed seizure activity at night. I do not recall ever having any seizures. I am divorced so don't know what I do in my sleep. The first time was found on accident. I had a sleep study because I have sleep apnea then my family doc ordered a sleep deprived eeg and that also showed one and I was using my bipap machine during the sleep portion so its not apnea related. Do they give meds for stuff like this? I don't know what to expect at the first appointment. I have a neuromuscular disease and I am on gabapentin for the nerve pain and its also a seizure medicine. However, still having the abnormal eeg's while on a high dose.

Jen
Jen,

I have scheduled an appointment for June 15th, I am married and no one including my husband sees any seizure like activity. I am really dumb founded. Because the neurologist refuses to give me my medical records makes me think he is hiding something. I know it sounds far fetched...but what if he was just trying to make a buck with returned visits treating my non-existant seizures. I hate to think that way, but his behavior is odd.

After reading some information on this site, tomorrow I am going to check to see if the doctor I am scheduled with is an Epileptologist. If she is not, I am going to cancel the appointment and try to find one.

I wish you lots of luck and hope things turn out well for you. Stay in touch and let me know how it goes.

Pebbles.


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