NeuroTalk Support Groups - Hashimotos Encephalopathy

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- General Health Conditions & Rare Disorders (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/)

- - Hashimotos Encephalopathy (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/171205-hashimotos-encephalopathy.html)

Hashimotos Encephalopathy

Has anyone else here been diagnosed with this disease? It is very scary. It is frequently underdiagnosed or misdiagnosed. I have stroke like symptoms along with a host of other symptoms. My Neurologist first said that it was a mental issue, and told me that I needed to see a Psychiatrist. I took memory tests and failed miserably. It has been a very stressful time. I would really like to know if anyone else has gone through this.

Welcome to NeuroTalk:

We do have some posters on this topic at our Autoimmune forum:

http://neurotalk.psychcentral.com/forum44.html

If you type in "hashimoto's" into the search some older threads will be listed too.

Quote:

Originally Posted by puma48 (Post 887176)

I have just been diagnosed with H.E. After four years of seeing 6 Neurologist's and many many tests. I have been diagnosed with everything from a stroke to a brain tumor to a psychiatric disorder until finally H.E. It is so scary and frustrating not to mention the loss of career, income and sanity!

I have just been pit on mega doses of prednisone for 7 days with more testing in three months. I am hopeful that I will feel better and am trying to keep positive!
Hang in there