New member - Dx'd with Myasthenia Gravis
 

Hello,

I'm Dee. I'm 48 & newly dx'd with myasthenia gravis. I am being scheduled for a plasma exchange & thymectomy.

As anyone could guess, scared out of my wits.

I live alone with my daughter, aged 21 & our cat.

I am at my boyfriend's half the time. So I am not alone much, unless my daughter is in school or at work.

I am unable to work. Also have FM/CFS.

Very frustrated with my life, but still manage to have a few good laughs every day. :)

Looking for a little extra support here.

Thanks!!

Hi, welcome to the community! Have you found the MG forum yet? If not, here is the link, and also the one for FM/CFS:

http://neurotalk.psychcentral.com/forum77.html

http://neurotalk.psychcentral.com/forum12.html

But feel free to jump in anywhere! Support is what we're all about here,
and we pretty much all are, or have been, scared out of our wits too!

Steck
 

:confused:Hi Dee Dee and all,
I am a new member and am in the process of having myasthenia gravis ruled out. What symptoms did you have ? Maybe we can support each other through this scary stuff. Both my blood tests were neagative, but I do have ptosis ( droopy eyes) and am exhausted quite easily. I will pray for you.

Hello.

My name is Melody and I just want to welcome you to Neurotalk. I see that you have been given the correct forum. And indeed, you can help each other.

We have many forums here and we even laugh at ourselves sometimes. Here's hoping you two get some answers.

You are in my thoughts tonight.

Take care

Melody

just connecting
 

Hello Dee my name is Lenora,
I have just joined NeuroTalk today. Because I saw your post about your new diagnoses. I will be 51 on this Friday. I was diagnosed with MG 2 years ago. I was found to have a thymoma requiring a thymonectomy. Before the surgery I received plasma exchange. I immediately felt better. Much so I when receiving the news about my tumor turned to surgeon and said Ok. So I will go home now and come back to the hospital and have thymonectomy at that time. And this was Monday morning. The thoracic surgeon sternly said No! you are scheduled for surgery on Wednesday. I have had plasma exchange one other time for a relax in symptoms following a medication change. Just dropped in to say hello and let you know there are others that understand.

Greeting!!
 

Hi Dee,

I'm Dena and I also am new here but I have been dealing with MG for 27 years. I was 12 when I first hear about it. I have been in & out of remission a few times but this is the worst it has ever been. I can't work but I have a wonderful husband who is learning about this disease. I have 2 children and 4 step sons and they have all been very helpful and wonderful with my disability. If you have any questions feel free to drop me a line. I check on here as much as I can but I will get back to you ASAP.

God Bless,
Dena
:hug:

Thank-you for directing me to the right forums.

I have not been on much the last several days as I was away at my boyfriends & had a very poor signal there!

I am home now & going to spend the next several days researching as much as I can.

Thanks again!

Dee:)