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-   -   Vitamin D: very important for MGers! (https://www.neurotalk.org/myasthenia-gravis/172244-vitamin-mgers.html)

Stellatum 06-26-2012 04:34 PM

Vitamin D: very important for MGers!
 
http://www.ncbi.nlm.nih.gov/pubmed/22672742

We've talked about Vitamin D here before. This study shows that myasthenia patients tend to be deficient in Vitamin D, and that they have significantly less fatigue after bringing their levels up.

Abby

Sparky10 06-26-2012 04:43 PM

Very interesting! The same can be said for us with MS. I take 5000iu daily. My neuro says that's too much but that it doesn't hurt either.

Shari_W 06-26-2012 04:56 PM

So True! I take 2000iu daily because my reading was in the single digits! Now that it's back up, I do feel a difference :)

koilover512 06-28-2012 06:59 AM

I have the same issue. I recently had the blood work done to check my levels. I was put on 50,000 iu once a week to see if it helps bring me back up. I hope it is working. I also started taking otc vitamin D with calcium. I would go outside more but I was recently diagnosed with lupus so that is a no go. :o

mrsD 06-28-2012 07:01 AM

Just a reminder...

RX version of vit D is D2. It is not very effective, and you may waste precious time learning that. It is an old product going back over 40 yrs. Long before the new D3 research of today.

D3 OTC is what people should be taking. 1000IU D3 for every 10 pts needed to raise.

The D thread here:
http://neurotalk.psychcentral.com/thread92116.html

bu452000 06-28-2012 09:57 AM

Thank you for the info, very interesting. Will have to try supplementing and see if it makes a difference.

Stellatum 06-28-2012 01:52 PM

Thanks so much, Mrs. D. I was looking for that thread, and trying to remember what you'd said about D2 and D3, and couldn't find it. I appreciate your listening in and helping out.

Abby

4-eyes 06-28-2012 06:31 PM

If you want to do a Vit D test without going to your doctor, plus be part of research: www.grassrootshealth.com .

Maiden8680 07-07-2012 02:28 PM

I always thought I felt better after taking my Vitamin D (50,000 1x a week). I thought maybe it was just all in my head lol :winky: I always felt less fatigue and tired though once it kicked in.

winic1 07-08-2012 01:23 AM

I've been told to take vit D, 2,000, but when I do, I get all kinds of unpleasant muscle aches, and it bothers my stomach. sigh. only me.

trying to get a lower dose, but I don't drive, so I don't do our shopping, and he who does, doesn't have a whole lot of memory or judgement for stuff like this, so so far, no go.

but shouldn't getting enough sun to burn half my back, shoulders, and arms to a brilliant red have done me some good? (dumb dumb dumb move on my part, but maybe there's an up side?)


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