It's So Hard To Deal With Alone. #CRPS
 

I know I probably sound really whimpy right now, but I can't help it. I feel like no one understands. I mean, I have a couple friends, but none of them really care to listen..

I just feel so alone right now. I feel like no one understands what I'm going through. Even my Mom. Sometimes I just feel so upset about everything that I feel like crawling into someone's arms and crying while they hold me. But she doesn't understand that sometimes I need to. She just gets mad at me when I feel this way. I feel so alone..

And sorry for such a whimpy and whiny post. I just had to get it out somewhere, somehow.

Hi,

I'm sorry you are feeling so down. I know what a struggle it is for those
who battle this monster called CRPS. I wish my own arms could reach
through time and space and hold you myself. I will do the best I can.
I will send good thoughts and prayers for your benefit, but as a mother
of a daughter with CRPs I don't think your mother actually feels the way
you think she feels. I;m sure she loves you very much and prays for
your suffering to cease. Try walking up to her, tell her you need a hug.

Here is a :hug: from me to.

sorry to hear your feeling lonely.. I think I speak for a large group of us when I say 1 we'ld reach out and hug you if we could and 2 we also know how alone you must feel. as we have had bouts such as that.. some times understanding what we are going through doesn't matter . we need that comfort of a hug or support to feel warm inside. to cry on a shoulder with out explanation. in the whole of the scenario we are still human and have those basic needs. and a quiet hug or snuggle can be the best medicine we could ask for.. with out really asking. we get so mentally and emotionally overloaded that a warm cozy pair of arms or a lap to lay your head on is the difference between losing it and coping. again the best we can do is lend you a cyber hug and warm thoughts. I hope that the warm words you find in here can find you and comfort you. best wishes with a warm heart .. soft hugs.

It is hard for all of us with this monster. At times it seems that no matter what we say or try to show love ones and friends what are disease is and does, they just don't get it.

I did have an acquantice (I call her this, because she never asks me to go do anything with her or her friends, just when her boyfriend wants to do something with me and my husband) finally ask me what the hospital protocol should be for the person with rsd. I quoted off the rsdsa instructions.

I think that is the first time, I have had some one really ask me questions about what to do for someone with rsd.

This disease is lonely and it seems even lonelier when everyone else is going on with life and here we sit.
Personally, I try to keep myself as occupied as possible. But I have to agree I still need hugs, so I just tell my husband right out. "I NEED A HUG" give it a try with your mom.

thank all of you guys. it means a lot. i wish for the best for all of you as well! i'll be praying for you guys everyday. i promise. (:

love &hugs! :grouphug:

Hello Sara
 

I am giving you a hug too. Any of us who suffer from pain, do feel alone at times. This RSD stuff is difficult. I am sorry you are younger, and have to have this disorder. I wish there were a cure for this. You are not alone. All of us here at NT care about you. ginnie:hug:

I'm Sorry
 

Ginnie is right...We all care. You are not alone, I feel this way frequently. You will be in my thoughts. :hug::smileypray:

Nothing wimmpy about having RSD. I really believe that it is levels and degrees of tolerance. When you've met that maximum tolerance level, all you want is love and any kind of comfort. I understand too that it seems like no one understands, and unless you've had this condition, there's really no way for anyone else to fully understand. But I feel sure that your Mom loves you very much. It is hard for those that love us to watch us hurt. I think they sometimes feel helpless, and at times ... it frustrates them too.

Hang in there gal. Always try to remember that tomorrow is a new day, and new hope that things will get better. You are not alone hon. This is a fantstic resource to connect with those who understand completely. :hug:

Hi my name is Kristina
 

Hey i understand how you feel. I'm 24 and I have CRPS type 2. I am having a really hard time finding someone to talk to. My partner and i have having issues communicating. My family is "TIRED" of hearing what i have to say. If you ever need someone to talk to you can email me anytime.

My family is the same way. They act like I'm just simply complaining about a bruise or something. And it's hard to find someone to talk to because no one understands. Because when you feel bad, they take every little movement or word the wrong way.

Thank you soo much for replying and saying that I can email you. It means a lot. And you can email me too. Anytime. I appreciate it so much.(:

I hope that you and your partner can try to talk things out more because that just adds more and more stress to what you already have. Love &hugs! :hug: