new with RSD/CRPS
 

Hi, I posted this in the introductions and now here..hope i did it right..here goes...

I was diagnosed with Rsd/Crps in June/July 2011 (from an injury in Feb. 2011 and surgery in April 2011). This was documented and briefly mentioned to me with no explanation except look it up on internet and do some research. Looking back on it, I was really stupid with going along and trusting the physician and OT...with nothing really being done.

To this point, over a year later I have still been in OT 2-3x/week (except for a 6 week time in Dec. when the surgeon said it was all in my head, nothing was wrong and caused a flare that was almost back to where I was in November), eating Motrin 800mg 4-6x/day, and just had a stellate ganglion block 5 weeks ago (which resulted in another flare up involving the rest of my arm).

Anyone have any advice on a GOOD physician in Michigan that can point me in the right direction and get me on the path to feeling better? It seems this is unknown and i keep getting bounced all over with no positive results.

Also, anyone also suffering from this..any helpful tips on how to deal with this condition in everyday life would be appreciated.

Hi Anne,

Welcome to the forum. This is a great place to learn how to cope with rsd. Which I am sorry you have.

I would definitely get an apt with a pain management dr. You are taking to much motrin and killing your liver. check out rsdsa.org for a list of dr.'s in your state. If you can't find one, let us know and we will help you look.
I know it is upsetting when a dr. blows you off unfortunately we all seem to go thru this at one point or another.

As far as dealing with rsd on daily basis. outside of meds. It is recommended to do epsom salt baths, calm music, meditation, and any other calm non stressful project.

:welcome_sign::welcome_sign:

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thank you. and the main management dr is the problem--he did one block, which caused major flare up..now wants to do rhizotomy..told me to view a website and decide. Now it's finding a dr that deals with RDS in the area--any suggestions on that?

Ok I think you will be spending a lot of time in front of your computer and on the phone with your insurance.. I suggest you type RSD/CRPS michigan into your search engine and take it from there. and keep bringing it here .. zoo many of us some one should have the answers you are looking for. as far as dealing with this.. i suggest a psychiatrist this should help. at least its worth a try.. it will take some time to learn how to deal with this beast, but you made a wise first step and came to this forum.... we are family here. and love to help each other , this is a great place to vent, ask questions, get sympathy.. and we send long distant soft hugs:group hug: be well and god speed