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-   -   neuropathy (https://www.neurotalk.org/peripheral-neuropathy/172700-neuropathy.html)

CammyJo 07-05-2012 01:17 AM

neuropathy
 
How many types of neuropathy are there, and whats the diff?

mrsD 07-05-2012 03:26 AM

Welcome to NeuroTalk:

This is a very big subject. You can start reading at this
link:

http://www.questdiagnostics.com/test...eralNeurop.htm

There are six years of experiences on this forum, including the Subforum at the top of the first page here.

You will have to start reading, and do some homework.;)
You need to start becoming your own detective to find your particular answers.

Dr. Smith 07-05-2012 10:24 PM

Quote:

Originally Posted by CammyJo (Post 894493)
How many types of neuropathy are there, and whats the diff?

I recently posted an excellent link describing many/most types of polyneuropathy in STICKY - Important Links to Useful websites

http://www.neuroweb.us/Chapters/Polyneuropathy/text.htm

Doc

Susanne C. 07-06-2012 07:34 AM

Quote:

Originally Posted by Dr. Smith (Post 894770)
I recently posted an excellent link describing many/most types of polyneuropathy in STICKY - Important Links to Useful websites

http://www.neuroweb.us/Chapters/Polyneuropathy/text.htm

Doc

The general outline of types is valuable, but there is quite a bit of misinformation in that link on the hereditary neuropathies. CMT is always progressive, even if slowly, the article states that it is "rarely" progressive. Not sure about the part that says males are more often affected- I did get it fom my father, but my sister had a more disabling condition, and my aunt had it as well. The article seems to be repeat some older concepts that have since been modified. It is, however, a comprehensive place to start.

Kitt 07-06-2012 09:27 AM

I agree with Suzanne C. There is a lot of misinformation in that article. Much has been learned about the types of CMT and HNPP.

Scroll towards the bottom to learn about CMTX.

http://www.ncbi.nlm.nih.gov/books/NBK1374/

You can learn all about HNPP from this site.

http://www.hnpp.org/

Remember that CMT and all the types and there are many - symptoms affect everyone differently even within the same family. And a person may not show any symptoms but can still pass it on. CMT is still misdiagnosed as something like polio, Fredrick's Ataxia, etc.

CMT is very complicated. Much research is going on but there is no cure/treatment at the present time. And it is progressive.

Kitt 07-06-2012 09:29 AM

Quote:

Originally Posted by CammyJo (Post 894493)
How many types of neuropathy are there, and whats the diff?

There are so very many types of neuropathy. There is a big difference.

There is a lot of information at the top of this page under "PN Tips, Resources, Supplements and Other Treatments". Charcot-Marie-Tooth Disease is on there as well. Also there is information on HNPP.

Dr. Smith 07-06-2012 12:46 PM

Quote:

Originally Posted by Susanne C. (Post 894878)
The general outline of types is valuable, but there is quite a bit of misinformation in that link on the hereditary neuropathies.

I don't think the list, or the site, was/is intended to be a comprehensive authority on all conditions. As a list/summary, it's still the best I've seen, and that is what was requested.

As far as the information, from the site's home page:
Quote:

The information is based on experience as a clinical neurologist and academician and was supplemented by classical neurological textbooks. More importantly the information is regularly updated by core journals in Neurology (such as Neurology, Annals of Neurology, European Neurology, Journal of Neurology, Neurosurgery and Psychiatry, Journal of Neurosciences, Current Opinion in Neurology) and Internal Medicine (New England Journal of Medicine, The Lancet). No effort has been spared to include the most recent described disease entities and their criteria for diagnosis, giving neurology a dimension different from what is perceived from classical textbooks.
http://www.neuroweb.us/
If you have exception with the material, there is a contact link at the bottom of the home page.

Doc

Kitt 07-06-2012 01:31 PM

As you may know, Dr. Dirk Deleu became a board certified neurologist in 1988. Nowhere do I see that he is an expert on CMT.

http://www.neuroweb.us/page2.html


The information concerning CMT changes regularly and what is posted is not that recent.

Dr. Smith 07-06-2012 02:01 PM

I don't think the list, or the site, was/is intended to be a comprehensive authority on CMT or any other condition. A list of the types of neuropathy and their differences is what was requested.

If you have exception with the material, there is a contact link at the bottom of the home page. Please direct objections & corrections there. Thanks.

Doc

mrsD 07-06-2012 02:20 PM

This is another site... but it is old too. 1998.

One can see that the drug list is lacking many drugs we now
know cause peripheral neuropathies.

But the page illustrates the complexity of the subject, how large it is, etc. It is written a bit more easily too.
http://www.aafp.org/afp/1998/0215/p755.html

There are many medical texts, with old information in them. Rose from here used to remark that doctor's using those old outdated texts, were the main reason so many with low B12 were suffering, and ignored by their own doctors.

Even texts with newer copyrights, can contain old articles that were never updated. Makes one feel really secure, right? NOT.;)


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