seizures returning
 

Hello, I'm new- my seizures have come back. 21 years ago I was assaulted & hit in the head by a man with a bat, &it caused a subdermal hematoma. I had emergency surgery when I was 16. Seizures began as full blown grand mal(s), occasionally. After a year or two they changed to simple partial(s);with auras. Long story short; they kept reducing & w/medication(was always on it,just different kinds). Several years went by w/o, only changed to complex partial(s) & I had no warning or memory of anything;just horrible headaches after. Sometimes I could remember everything&was aware during them. Now, a year ago out of no where they have come back w/no warning before, only last a few seconds & I go right on doing whatever I was right before. It caused a car accident - - don't even remember any of it(hitting a stop sign). I "woke up" on the other side of a side street on my way to work-thinking, "why did I turn this way?"; and drove right to work. Well, the police came into my office,and humiliated me...called me a liar & tried to arrest me.
Well, I can't drive now; so I lost my job. Anyway... They are coming on while I'm playing with my toddler, so I can't even go outside alone to play w/him. I can't go anywhere, or take my older kids anywhere. This is driving me crazy! Everyone keeps telling me to apply for disability- LIKE ITS JUST an simple thing to do. I will if needed, I'm just so frustrated w/ my neurologist; I don't want to be pumped and put on meds that will work/not work, and end up making more seizures happen as going up and down. Does anyone have similar experiences?

Hi infokym,

Welcome to the forum! I'm sorry to hear that your sz. have returned some of it could be from the car accident causing trauma or if you had a concussion or this could be from hormones changing in your body. I've had absence (petit mal) sz. for 40 yrs. and then complex partial sz. started up and when I was put on neurontin this caused status sz. which caused more brain damage.
I've never been able to drive in my life but I didn't let it stop me I've been working since I was 16 yrs. old, and I've had a full time job for almost 28 yrs. working with students in Special Education.
My advice to you is to see an Epileptologist (Dr. specializing in epilepsy) and be sure you go to an Epilepsy Center which are usually at University hospitals or large hospitals. I've gotten the most help seeing an Epileptologist and I'm a lot less sz. meds. You can start taking vitamin B12 1000 mcg. once a day this helps reduce sz. for many people. Call your local Epilepsy Foundation because you should have never been arrested for what happened this is totally against the law. The Epilepsy Foundation can give you legal advice and help you out. I wish you the best of luck and May God Bless You!

Sue

Nice to meet you!!