16th August
 

New appointment with Neurosurgeon, Mr. Yiannis. I presume this is to discuss a new scs. Unfortunately they can't implant the battery and side leads in the last place as I've been cut open too much, so right side it is this time.

Managing on lots of meds .. Having problems with my neck which could be related .. Can't turn head to right our left without bad burning pain and numbness down arms .. Seeing osteopath today to see if he can do so,etching before going down the neuro route.

Hope you are all smiley x x :grouphug:

Fake smiles here
 

And as you have pointed out my friend, with neck driven pain and numbness in arms, it is too much to Grin and Bear it; thus, I produce a fake smile when I can for the sake of those around me until we can fuse the cervical vertebrae.

Looking forward to another surgery, Nope. Wanting relief? Yup, I might even buy snake oil if it were available from some charlatan in an old west town if that existed these days.

Arghhhh...... you and me Saffy, you and me.....
Mark56:hug:zzzzzzzzzzzzzzzzzz gently:grouphug:

Ahh Mark, I knew you would be one that replied. My physio says my neck is in spasm and thinks that the pain I am getting on both sides of my neck but particularly the right, which goes down to my elbow, is due to my using crutches for so long. I've been given a collar to wear when watching tv, but not all the time so as to get dependent on it.

Not allowed to drive as my insurance will be null and void ifi have an accident .. Frustrating.

The pain was so bad yesterday that although I am only supposed to have 20mg Zomorph, imwas taking 60mg and it still wasn't doing anything for the pain. Plus, taking diazepam like sweets .... 50mg at a time and then taking Tamazepam through the day just to try and sleep through the day to forget the pain.

Some days are poop.

Roger That
 

Some days are quite difficult,
tears come too easily,
Yes, my friend Saffy, we have been the object of many scalpels,
Nevertheless, there is HOPE in our future times,
Healing with management of pain yet beckons.
I will submit.
No choice.
Too much pain.
People tell me once again, my face is an open book turned to the pages of pain.
Beyond this chapter I yearn to live,
Yup,
I am praying for you, my friend, and for Eva, who has touched this thread, and hurts powerfully so,
I pray for her as well,
Prayin,
Humbled,
Mark56

Saffy and mark, although I haven't known y'all long, I'm blessed by how much you have both helped me! I'm sorry for the rough roads y'all both face. I was lucky that I was diagnosed and treated with my rsd quickly! I wish you the best, and I'm pleased with my scs and hope your new one will help you!

Lots of :grouphug:

So thankful for yalls advice!
:hug:

Tkayewade, gOod to meet you too!
We're in in it together as they say ...

Am now having to wear at cervical collar which brings relief to the effort of having to hold my head up, and hey .. I'm pointing in the right direction.

Just getting ready for some sunshine here in the uk so have my sun parasol out and deck chair.

Saffy & Mark
 

:( Geeze Whiz :( I don't even know what to say. It's such a helpless feeling knowing that this pain has you down like this. 2 people on this planet who least deserve this monstrosity.

I know what it's like to not get enuf relief from meds, but please be careful with those doses. :hug: Hopefully your doctor can make some adjustments to your meds, Karen.

I haven't been posting much lately, as I'm not able to get online much due to helping my single daughter watch her 20 month-old son while the daycare provider is on vacation, and being gone myself. The summers always seem to be so crazy and I'll be glad when school starts in a month.

Please know that my heart goes out to you and I'm sending many prayers.

Rae
:hug:

Stuck in bed now as it hurts to breathe in down my neck and shoulder blades. Seeing my physio tomorrow .. Hopefully,he will help.

I hope that someone has some answers for you. I know how you feel, I have rsd for 4 years now and some days you just don't know how your going to make it to the next, but you do my friend, and hopefully we all do.
I hope that your feeling better.

Sherry from Rocky River, Oh