Hello my name is nancy and I am new to this forum, I have a quetion
 

Hi, I live in upstate NY in the Syracuse/Rochester area, my mom has ms and it very bad... Her doctor is not listening to her and she needs to find someone that listens to her and is a great neurologist. Does any one have suggestions for doctors in this area? It is in desperate need for her.. please help :(

Hello Nancy and welcome to our community.

I'm so sorry that you and your mother are so severely affected by this cruel disease.
One of the other members will liikely be able to point you in the right direction but sorry again, I'm on the other side of the contininent and don't know of anyone in your area.

Hang in there. You are among friends who understand.

With love, Erika

There is an MS center at Dartmouth in midstate NH.

You can ask your local neuro for an MS center and I am sure you will find more than a few. If I remember correctly there is one in Albany.

Good luck.

I live in another state but think if you go to support group mtg (check local NMSS chapter) many of the particiapnts could give you personal opinions and feedback as to a good neuro.

Good luck!

I found this.....good luck..:hug:

Strong Memorial Hospital University of Rochester 601 Elmwood Avenue Rochester, NY 14642-8873 585-275-7854 (585-442-9480 FAX)

I don't live in New York and don't know anyone but I just want to say that you are a wonderful daughter to try to find a good doctor for your Mom. Welcome to our group.

Here is a link to the NMSS page that lists affiliated clinics in upstate NY:

http://www.nationalmssociety.org/cha...ers/index.aspx

you can also try calling 1-800-FIGHT MS. you can get your local MS chapter and they can help you find someone.

i'm praying you and your mom will find a better dr. can her pcp help? perhaps even a referral may get her seen faster.

There is an awesome neurologists' office and MS Clinic located in the University of Rochester, Strong Memorial Hospital. 601 Elmwood Ave, Rochester, 585-275-7854. I've been seeing a neurologist there for 18 years and have been treated very well. From my experience and from hearing from other MS'ers all the neurologists in the MS clinic are good. The doctor I now see is Dr. Matthew Bellizzi.

Also contact the Upstate NY Chapter of the National MS Society. 1650 South Ave., Ste 100, Rochester,1.800.344.4867 or 585-271-0801. It's located right around the corner from Strong that has so much information available. The information is not just for those with MS but for their families as well. I've been volunteering at the MS office and see how much information and help they have to offer.