update
 

Hi, everyone. I am unquestionably better. I still tire easily, and I have spells of weakness now and then, but I'm able to do things I couldn't before. I noticed the other day (it's the small things that really stand out) that I don't send the kids upstairs to fetch things any more because I can easily do it myself. I know you will all understand what a big deal that is.

I have to think it's the Imuran. I was on it for over a year before I noticed an improvement, but most of that time the dose was (I think) too low. I started with two pills a day and moved to three, but it's only for the past three months that I've been on four (200mg.).

I'm immensely grateful for this improvement. I don't know what will happen next, but I'm hopeful. Thanks for all of your help and support, and I wish you all similar good news.

Abby

Congratulations on the improvement! I've always been one that believes a celebration is in order for any improvement!!:partytime2::partytime2::partytime2:

Oh Abby I had a feeling the Imuran might work for you. It worked for me but side effects were too rough. I just had a small infection and it has set me back. Now it's another round of IVIG to try to get some strength back. Went to casino in NC and someone broke into my car and stole all my clothes but worse than that they stole my Meds. Sure hope they take a bunch of my Mestinon. Anyway had to turn around and come home.
Didn't mean to rain on your parade. I am really happy for you!!!!!:grouphug:
Mike

Glad you're doing well.

Thanks, Mike. I knew you would be glad to hear my good news. I hope something wonderful happens to you, too. I can't understand why people react so differently to the same medicine. My brother-in-law was on it briefly for something else, but it was damaging his liver.

I hope the IVIg works for you this time around. Did you say once that they were considering trying plasmapheresis for you?

Abby

Hi Abby
Yes my neuro is holding plasmapheresis in reserve. He said it was very invasive and we are still trying to figure out a combo that will work. With 4 positive antibodies I'm sorta a strange bird. We are going to do 12 IVIG's this time. I guess if I get real bad they will do plasmapheresis. My wife agrees with him. Not sure what I would do without her.
For You :partytime2:
Mike

Hi Mike,
Don't be afraid of plasmapheresis, I have them since 3 years and I am now on a one exchange every 5 weeks schedule.
I don't know what I would do without them...
Maurice.

Yours is wonderful news, Abby! So happy for you and your family!!

Hooray!!!!!!