NeuroTalk Support Groups - New Member/Autonomic Failure

NeuroTalk Support Groups (https://www.neurotalk.org/)

- New Member Introductions (https://www.neurotalk.org/new-member-introductions/)

- - New Member/Autonomic Failure (https://www.neurotalk.org/new-member-introductions/174355-autonomic-failure.html)

New Member/Autonomic Failure

Hi! I am so glad I found this site! I am 41 and have been sick for about 9 years with what seemed like strange, unrelated, and worsening symptoms - dizziness, digestive issues, poor circulation, tremors, and complete heat intolerance. I've been to every kind of doctor you can imagine, most of which either say I have anxiety or that they know something is wrong, but they don't know how to fix it or what to do it. I recently visited Mayo and was so glad to finally hear someone tell me i am NOT crazy! I'm going through extensive testing and consultation, but appear to have some type of autonomic failure. I want a diagnosis, but sometimes scared to hear this all. I realize we all want a quick, magic cure. So now I'm trying to focus my energy and accept the adjustments I've had to make in my life - and they are very hard with 3 children and being so independent for the majority of my life. The heat problem is so severly limiting, I absolutely hate it. I do not sweat at all and that is really bad living in a very hot area in the summer. I would love to hear from anyone with similar issues and I'm hoping to gain support from this community. Thank you!

Katie

Hello & Welcome!!

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Katie,

:Wave-Hello: It is great to have you come and be with us. You will Fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forum for some assistance. There a good number of fellow members there.

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

OMG LOL Am I not Alone?

Hi Katie,

I am having the worse summer of my life.....please tell me more about your condition, as much as possible. I have a heat intolearncethat causes me to unbearably Ipainfully and ruefully itch like crazy, have a tender burning scalp, my hair has been falling out almost all year, when the sun touches me I breakout in a burning prickly itch PAIN!! not just a little itch..i cannot do anything strenuous or I start itching and it is a horrible painful itch everywhere..., i cannot more than move just a" little" on a hot day.

..ive had an escalation of PN problems this summer and weird burning, hellfire episodes where I have had to literally soak my hands and feeet in ice water to numb them as they were on fire...i am basically allergic to the heat and sun and i do not sweat right...do you know what is going on with me??? please help! ANY insight or suggestions would be so so so appreciated I have systemic sjogrens, fibromyalgia, peripheral neuropathy (which was manageable until this spring when things stated going cuckoo??!!), and autoimmune ear disease Please hang in there.......
FacingChains, justs call me chains:hug:.