New to RSD and Chiari I Malformation
 

Hi Everyone,
I'm Beth from the Outer Banks in NC and I have been dealing with RSD in my left foot since Dec. 06 from a MVA. I've been lurking around a few boards learning a lot about RSD and making sure I am getting the treatment I need. I just found out Monday about the Chiari I Malformation so I have been doing quite a bit of surfing the net. If anyone has any info to share that would be great. I wish all of you as pain free days as possible.

Take Care,
Beth Radigan

Hello welcome to NT.
Another combo dx - so sorry about that.
I hope you are able to find and get good treatment for both.

Hello And Good Luck!
 

:) YEAH GOOD LUCK TO YOU MAKE SURE YOU FIND A GOOD DOC. I AM HAVING SURGERY ON THE 23 AND FOUND A GOOD DOC. GOOD LUCK!

Hey, Beth. :)

I just wrote Angela about this. Check out these sites:

www.wacma.com
www.ASAP.org
www.chiarione.org
www.conquerchiari.org

Also, make sure to find a good, experienced neurosurgeon so you'll know whether you're a surgery candidate or not. A neurologist will be of no help whatsoever. :rolleyes:

Good luck!

LIZARD :)

Chiari and RSD
 

I, too, am dealing with RSD like symptoms that I suffered with right after my failed surgery and now came up randomly after 8 years. I am trying to get doctors help to do an MRI because I don't know if it is the RSD itself or if something has changed in my neck to cause compression.. How can I tell??

Good luck to you and I wish you all the best! Attend conferences thru the Chiari orgs. and be informed.. NEVER have surgery unless you have done a lot of research and are fully confident in your doctors knowledge of this condition.. Believe me.. I learned the hard way!! :mad:

Good luck.. ( I can't type as finger's are numb now!!)