Support groups in UK for PCS??
 

Apart from Headway, does anyone know of any support groups for PCS?

Headway do not answer the phone in my area.

Which is highly annoying when you really need to talk to someone.

I haven't found much at all in the U.K.

on this page are links to the other uk organisations that may be able to help

http://www.channel4.com/health//micr...rain_help.html

Headway is mainly volunteer based and the regional numbers are on a best endeavours basis - it may be easier to ring the head office as they are quite helpful.

How are things this week?

Thank you for that info, it is very helpful.

I asked my doctor today if they knew of any support groups and they replied : "No".

I thought today would be better so went out for half hr with a friend to one shop.
It was so daunting, too much noise and info thrust in my face.

When I stopped at my surgery to make an appt the secretary asked for my name and with a q behind me and people everywhere I froze and it seemed like forever until I answered.

The dizziness is the worst its been for a week. The doc prescribed me something that may help meant for vertigo.

I had to organise full time child care today as family are getting tired and I burst into tears down the phone to the nanny, as the gravity of the situation hit me.

Apart from that I am great.

Thankyou for yr reply xx

Don't fret to much - we have all been there in one form or an other. I remember (:winky:) a time a few months ago when I was asked to sign a form - could I remember how to do it ........

Hopefully with the childcare in place it will give you some time and space to recover. It is surprising how beneficial quiet and no stress is. Something as simple as sitting in an outside cafe or pub with a drink works wonders - I am lucky as I live near the sea and can walk along the coast to clear my head. Certainly helps with the high pressure we have been experiencing in this country this week - which is contributing to why your head hurts more.

The other thing is to take paracetemol or some other mild painkiller regularly. I didn't think much of it until the doctor insisted and it does work. Don't bother with the expensive ones, Aldi or Lidls at 19p work just as well.

I guess you are finding your GP as clueless as mine in terms of treating your injury. In the early stages he thought it was depression or an early on set of Alzheimer's. I took a joint visit with my wife to convince him it was more serious.

Hang on in there its a long road

Hi,
I'm UK based too and haven't really found any support besides Headway and this forum. I am quite fortunate that my kids are 10 and 12 so they have got used to my limitations and erratic memory etc.

They have been amazing during the holidays and not too demanding. I braved taking them to a small museum and gardens via public transport and we actually had a lovely chilled day out with no time pressures.

My daughter took the lead and we often joke about me giving the outward impression of being the responsible adult but they have to look after train tickets and give me directions.

Hang on in there x