NeuroTalk Support Groups
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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   first time I've opened up to anyone (https://www.neurotalk.org/new-member-introductions/175008-time-ive.html)

smc_lmt 08-18-2012 08:37 PM
first time I've opened up to anyone
 
Hello, my name is Sarah and I am at a point in my life where I need support and understanding when it comes to my conditions. I have chondritis in my rib cage which causes nerve damage flares at any given time. I also suffer from an autonomic dysfunction that causes my blood pressure to suddenly drop without warning. Does this possibly relate to anyone? I appreciate your time and hope all is well out there for you.

Darlene 08-18-2012 11:30 PM
Nice to meet you!!
 
Sarah,

:Wave-Hello: It is great to have you come and be with us. You will Fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Check into the following forum for some wonderful fellow members for assistance:

Peripheral Neuropathy
http://neurotalk.psychcentral.com/forum20.html

Fibromyalgia and Chronic Fatigue
http://neurotalk.psychcentral.com/forum12.html


Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

MelodyL 08-19-2012 09:51 PM
Quote:
Originally Posted by smc_lmt (Post 906909)
Hello, my name is Sarah and I am at a point in my life where I need support and understanding when it comes to my conditions. I have chondritis in my rib cage which causes nerve damage flares at any given time. I also suffer from an autonomic dysfunction that causes my blood pressure to suddenly drop without warning. Does this possibly relate to anyone? I appreciate your time and hope all is well out there for you.
Hi Sarah:

Welcome to Neurotalk. I see you have been given the correct forums and please do check us out and we also have other forums that you might like to visit and relax in.

Nerve damage is no walk in the park. And the blood pressure dropping, well that must be so scary.

Please know you are not alone.

Hang in there.

take care,

Melody

alt1268 08-20-2012 10:02 AM
Welcome Sarah,

your in great company here at Neurotalk. Feel free to look around and join in to the forums. Here you will meet friends who are experiencing similiar issues.

chiari1 08-21-2012 11:08 PM
Quote:
Originally Posted by smc_lmt (Post 906909)
Hello, my name is Sarah and I am at a point in my life where I need support and understanding when it comes to my conditions. I have chondritis in my rib cage which causes nerve damage flares at any given time. I also suffer from an autonomic dysfunction that causes my blood pressure to suddenly drop without warning. Does this possibly relate to anyone? I appreciate your time and hope all is well out there for you.
I hear you girl!

I have a chiari 1 malformation. A lot of times my heart rate just randomly drops...or explodes. It's insane.

It happened to me in the grocery store once. Had to be taken to the hospital because my heart wouldn't beat properly and I kept collapsing.

Stay strong! You can message me or add me on skype if you want!

SAMATO 03-28-2013 11:11 AM
T.o.s - not fun
 
Hello, my name is steve. I was injuried at work over 1 year ago, and the pain is becoming more and more every day. Some of my symptons are: Can not raise my rt arm over shoulder, collar bones / upper chest / neck are very painful, rt arm can not extend out fully, can not lay on right side, can not lift over 10pounds, arm goes numb when sleeping,. I'm going to see the thoracic doctor at the ending of april. Does anyone have any tips for me. Thanks steve

Darlene 03-28-2013 11:57 PM
Nice to meet you!!
 
Steve,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forum there are a good number of caring friends to help you out:

Thoracic Outlet Syndrome:
http://neurotalk.psychcentral.com/forum24.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Msudawg89 04-30-2013 09:46 PM
Find a doctor
 
Quote:
Originally Posted by SAMATO (Post 969937)
Hello, my name is steve. I was injuried at work over 1 year ago, and the pain is becoming more and more every day. Some of my symptons are: Can not raise my rt arm over shoulder, collar bones / upper chest / neck are very painful, rt arm can not extend out fully, can not lay on right side, can not lift over 10pounds, arm goes numb when sleeping,. I'm going to see the thoracic doctor at the ending of april. Does anyone have any tips for me. Thanks steve
Find a doctor who is knowledgable about Thoracic Outlet Syndrome. Read up on it as well. You sound like how my story began.

Jomar 04-30-2013 11:21 PM
Quote:
Originally Posted by SAMATO (Post 969937)
Hello, my name is steve. I was injuried at work over 1 year ago, and the pain is becoming more and more every day. Some of my symptons are: Can not raise my rt arm over shoulder, collar bones / upper chest / neck are very painful, rt arm can not extend out fully, can not lay on right side, can not lift over 10pounds, arm goes numb when sleeping,. I'm going to see the thoracic doctor at the ending of april. Does anyone have any tips for me. Thanks steve

Our Thoracic Outlet Syndrome forum
(Thoracic Outlet Syndrome/Brachial Plexopathy.)
http://neurotalk.psychcentral.com/forum24.html

SFNgirl 05-01-2013 06:29 PM
Quote:
Originally Posted by smc_lmt (Post 906909)
Hello, my name is Sarah and I am at a point in my life where I need support and understanding when it comes to my conditions. I have chondritis in my rib cage which causes nerve damage flares at any given time. I also suffer from an autonomic dysfunction that causes my blood pressure to suddenly drop without warning. Does this possibly relate to anyone? I appreciate your time and hope all is well out there for you.
Hi Sarah

I have small fiber neuropathy so suffer from nearly constant pain. And with it, I have damage to autonomic nerves. My blood pressure drops suddenly upon standing, or leaning over, etc. I am trying lyrica now after no success with gabapentin for the nerve pain. They didn't really give me any advice on the blood pressure stuff other than to stand up slowly and be careful. The recent warmer weather here in chicago seems to be better for me than the cold, which is a real trigger for my worst burning pain. The bad news is I live in Chicago, not many warm months! But I'll take what I can get. I'm sorry you are suffering, but I can relate, and hope you have some better days ahead.


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