Hypokalemic Periodic Paralysis/Potassium Meter
 

Hi,

Has anyone purchased and tried using the potassium meter. With the supposed dangers of taking potassium with eplerenone, also known as Inspra, I did, but found it too time-consuming and cumbersome. I kept contaminating the special paper even when following the great instructions on Youtube.

I had to settle with adjusting my meds and supplements based on how I feel.

If there's pain, then small dose of K+ act as an analgesic and anti-inflammatory. It generally only takes 5 to 15 minutes for an effect.

If I experience gastrointestinal paralysis along wiht abdominal distension, I've found 297 mg of potassium to work in less than 5 minutes after hours of being in that condition which makes me look as if I'm carrying triplets.

If I have a severe postprandial attacks after ingesting carbohydrates, I can abort by quickly ingesting 5 (99 mg) pills of potassium chloride, and this is in addition to the HypoKPP attacks also provoked by carbohydrates which make me lose the ability to support my own body weight.

In any case, I'm hoping for some BioEngineer to design one that's user-friendly. Like the easy to use glucometers that have been designed for diabetics. Because when all is said in done, I'm just a good assessor of my own condition, but could very easily become hyper versus hypokalemic, a condition that's also very dangerous.

Hi Kimmie,

I found your HKPP postings here because I subscribe to Google alerts for "periodic paralysis." This doesn't appear to be a very active spot for HKPP, so I wanted to invite you to a few other places as well.

There is a website by the Periodic Paralysis Association at www.periodicparalysis.org They have an email listserv you can join. There are many great people there to dialogue with about HKPP.

If you have a confirmed diagnosis, you can join an elite listserv sponsored by Periodic Paralysis International at www.hkpp.org

Finally, there is a very active group on Facebook, called Hypokalmic Periodic Paralysis Network.

I think you may get some helpful replies to your questions from the wonderful patients in these three support systems.

Best wishes,
Tatia