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-   -   Suspect LEMS (https://www.neurotalk.org/new-member-introductions/175229-suspect-lems.html)

Savy 08-22-2012 03:51 PM
Suspect LEMS
 
20+ years ago I was treated for auto-immune symptoms by a doctor that is no longer in practice. I am experiencing weakness in my legs. I suspect the problem is Lambert-Eaton Myasthenia Syndrome. I need to connect with a doctor able to diagnose an treat. (A doctor with experience treating MG may also be a good choice.)

I live in central California.

:doctor:

ejh2 08-22-2012 05:16 PM
me too
 
Quote:
Originally Posted by Savy (Post 907992)
20+ years ago I was treated for auto-immune symptoms by a doctor that is no longer in practice. I am experiencing weakness in my legs. I suspect the problem is Lambert-Eaton Myasthenia Syndrome. I need to connect with a doctor able to diagnose an treat. (A doctor with experience treating MG may also be a good choice.)

I live in central California.

:doctor:
I was diagnosed with lems early 2010.I don't know any neurologists out there but when you do find one ask about DAP (diaminopyradine).I have been told that it's hard to get and experimental , but I get around so much better and I wish you alot of success in your search.
jim

MaryTSteckart 08-22-2012 07:07 PM
suspect LEMS
 
If you can do some more research online, I'm sure you can find a specialist in California--or ask for a referral to Mayo Clinic for further evaluation. My appointment with Mayo is 10/16/12. Keep in touch--email me if you want my phone number and we can talk. Call me, and we can talk *edit* (contact member via forum PM or email)
Welcome to Neurotalk !
Steck

Darlene 08-23-2012 12:43 AM
Nice to meet you!!
 
Savy,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forum, there will be someone there to assist you.

Autoimmune Diseases
http://neurotalk.psychcentral.com/forum44.html

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Savy 09-03-2012 12:20 PM
Quote:
Originally Posted by ejh2 (Post 908037)
I was diagnosed with lems early 2010.I don't know any neurologists out there but when you do find one ask about DAP (diaminopyradine).I have been told that it's hard to get and experimental , but I get around so much better and I wish you alot of success in your search.
jim
DAP is not an option for me. I have a seizure disorder.


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