Pcs!!!
 

Hi,

I am first time here, I would briefly describe my case... I am told by neurolgist I have PCS, however, I fear it is something else.

I had had several small head injuries.... after some time I felt dizzines, headache, momory problems, confusion, I did CT, it was ok.... 2 weeks I had severe confusion.... but within 2 weeks I recovered about 90%. Nearly symptom free.

It happend that I had another, just a minor injury one morning. Same evening I noticed kind of paresthesia in my left face.... like burning.... it comes and goes awaya, I had problem with tongue, it was heavy, no more.... then suddanly my mental abitilies declined, from good organizer I can not organize liittle things, I had a feeling like I could get seizure, it is maybe awaya,

but I feel confusion in head, like my brain is dead, emotionaly empty, frustrated, agitated.... can not think clearly, disconnected form enviroment.

MRI of brain was ok. My doctor says it is PSC. We are doing some acupuncture, it hepled first time, but my brain becamo se sensitive that even if I put my hand on head I have worsenign of symptoms.

Could this be PSC or something more serios. Like I am mentaly dead.

Thank you

Pcs?
 

It maybe helpful if you can explain how you got hurt and when you got hurt. What have you done to address your symptoms. What tests has your doctor advised.

From your post I see alot of similarities as when I was early in my recovery immediately following the concussion I suffered.

Damodar,

Welcome to NeuroTalk. You may have PCS but from what you describe, there is not enough information to help you much.

If it was something more serious, your doctor would have picked up on those serious symptoms and prescribed some tests.

If you tell us more about yourself and each of your injuries and the symptoms right after those injuries and any other health issues, we may be able to be more help.

My best to you.

Dear Damodar,

I am sorry you are so frightened, what you have described sounds scary but very common. I lost the use of my left arm last wednesday then it came back, my left eye vision switches on and off. What I am saying is the effects of brain injury can be extreme but normal.

Seizures are common place it seems when the brain swells slightly around an affected area. Double concussions ( one happens, then another even if it's years later) are serious. So what may appear to you as a mild concussion may have exacerbated the first injury more severely than you realise.

Having said all that, there is nothing wrong with putting your mind at rest. Go to your GP, tell him exactly what worries you, particularly the feelings about your tongue and one side of your body, ask if he feels you need a neurologist to check you over for epilepsy ( meaning brain swelling or damage).

I hope you get some relief from this site, do as Mark said and leave your worries written here frequently where you will get much advice.

Reply
 

Dear friends,

thank you very much for all you replies. I am told by ma neurologist it is PCS, and by psychiatrist. I am asked here how I injured myself.

Well, I didn't mention it because it is a bit bizzare, but I will do it now. I injured myself in most stupid way. Last year I was diagnosed with serous neurogical disoreder CIDP, symtoms used to be terrible, pain withno relief, wweakness, dysestehsias... etc.

I recovered, to some extent, but at times I was so desperate that I used to hit myself withmy heand in head, yes it is stupid!! At first I was so weak that Iwas not able to injure even insect. But my streanght recovered, and habit remaind, I did it severa ltime later, once after that I had dizzines, headaches, confusen, so I did recover.. and said never again.

But my head became too sensitive, one light touch cause present symptoms. This is the way I got it. Stupid, you will all say, CIDP is heavy issue and sometimes I was realy desperate. CIDP is now ok, but my head not.

Today I awake, after short sleep, I see things aroudn, but I am not emmotionaly aware of them.

I remember thngs, but I am unable to organize things. Could I casoe any kind of dementia, my doctor said not at all, from what he sees.

Also, such state of my counsciousness I had once in onemajorr depression episode, but I recovered fully. Also I was diagnosed with kind of pschosis last year, but it was induced by SOluMedrol I got for nothing, it wasconfirmed my two psychitarist. I recovered from that, but now like part of it comes out again.... benign I would say.

Mostly, I am most concerned I caused some kind of dementia since Ifeel stupd, disorgainised... doctors say no...

Thank you for replies...

Tests
 

As for tests, One CT was nrmal, 2 months later MRI was normal, and Neuroglosit didn't find it neccessery to do any other test. She also didn't want to give me no medicaions, yes, after first acupuncture, suddanly i was very god, but jut light touch to my head (I was putting shoe on and jjust touched the wall, not hit) cased so much pain and confusion.

I suppose that is not good sign if my head is so snesiteve.:confused:

Causes
 

No you are not stupid. Your frustration and pain may have caused you to hurt yourself. The confusion, memory, and other issues are normal, it is not dementia. Be kind to yourself and patient. You will heal.

Hope you feel better.

Hi,

thank you for encouragement. It is hard be understood by people who have no idea what are we speeking about.

Z