NeuroTalk Support Groups - New Member seeking advice or help

NeuroTalk Support Groups (https://www.neurotalk.org/)

- New Member Introductions (https://www.neurotalk.org/new-member-introductions/)

- - New Member seeking advice or help (https://www.neurotalk.org/new-member-introductions/175932-seeking-advice-help.html)

New Member seeking advice or help

Hi My name is Heather,
My son, Conor, is 3 years old he started having seizures at 4 months old. The doctors say it was not the shots, my husband and I think otherwise. After the 6 months shots, more seizures. Diagnosed with GERD. Developmental delays started. After he was a year old we started going to Childrens in Pittsburgh, PA. They Neurologist found an X chromosome q21.1 duplication. Then a chromosome 15 Polg double duplication. I was tested and have the same thing. Now it's considered a normal varient.

Conor started to sit right before he turned 3 in Nov 2011. He can not crawl, walk or talk. He can not feed himself either. His seizures have been undercontrol since he was 18 months old.

It's amazing to watch him. He almost looks like he has CP. He has a had therapies since he was 7 months old.
Recently they found an error on the Chromosome 5 q34. Otherwise know as Juvenile Myclonic Epilepsy. I need help!

Anyone that can comment or had been through anything similar I could use some support and help with what others are going through.

Nice to meet you!!

http://dl2.glitter-graphics.net/pub/...xzmf3srty8.gif

Heather,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about your little son. It really hurts the parents when one of their lovely children are going through things like this. I myself have epilepsy since I was 10. There a great number of things to watch for. Don't let see any bright lights shooting at his face (theaters, just have him turn away from the screen during that time an fireworks.) Give him some Vitamin b complex. Also keep a record of the number, time he was in it, and his condition after one.

There is a forum for you check into for more assistance. Just click on the founding:

http://neurotalk.psychcentral.com/forum11.html

Give Conor a great big hug for me. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug: