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-   -   Steroids (https://www.neurotalk.org/myasthenia-gravis/176083-steroids.html)

lawgirl 09-06-2012 05:51 PM

Steroids
 
I once took a dose of Prednisone and experienced the worst migraine with aura, along with agonising pressure behind one eye. I felt so ill, I actually called an ambulance.

I really want to try a steroid again but really don't want to go back to Prednisone - does anyone out there take a different one? Why is Prednisone the steroid of choice?! Are there any other options?

Thank you!! <3

4-eyes 09-06-2012 06:25 PM

I think methylprednisolone is used a lot in Europe. There is also solumedrol (IV). Also, it "may" have been a coincidence about the migraine and unfortunately, there's only one way to test that theory. :( In the end, I think pretty much all steroids will have the same potential side effects. This is probably something you need to discuss with your doctor, and if you do give it a go, have a plan in case of pain (like not starting the script on a Saturday! LOL)!

It's always something, isn't it? Good luck with your decision.

southblues 09-06-2012 06:51 PM

Does anybody know if dexamethasone is used in myesthenia gravis?

Edit: I just looked up a dexamethasone prescribing information thing. It warns that if it is used with acetylcholinesterase inhibitors (mestinon), it may make things worse.

bny806 09-06-2012 08:44 PM

Ugh, so sorry to hear that!!! Is this your first time on steroids?? are they giving it to you for the MG?


What are the "usual" bad side effects from steroids- i know bad sleeping etc.. but I have a bottle of prednisone sitting on my counter to take my first dose in the morning and I am NERVOUS.. throughout all of this I haven't tried taking any steroids.. so i'm hopeful - what if that was the missing link.. but what if it makes things worse and I regret it!!
What's yalls experience?
Lawgirl- good luck, keep us updated how it goes!!


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