Marihuana / weed / cannabis
 

What does it do for MG?
I mean, it makes you relaxed but does it make you weak?
Because there are people with mg (a girl on youtube for once) that say using weed has helpt them with there mg.

I really want to try it, medicinally, tea or something.
Tnx

I created a monster.........

I haven't tried it since I have had MG. I am not in a medical marijuana state. I am also interested in the answer to this question. I have read people saying that it helps, but it doesn't seem that it would.

Hi Raven
 

I am not sure what MJ does for MG either. I am not in a legal state. I also believe in a persons right to try this. If you do, please be careful, the laws are so very harsh, and there is no compassion for those that are sick. That is the reason I don't. I can't imagin being in jail, missing the medications I do need to have quality of life. Maybe it isn't worth the try to put yourself at risk. Until our country allows freedom, we are in a kind of police state really. I graduated in 69' and I don't believe it is wrong. Being in custody would be a terrible wrong, and that wouldn't be worth the risk to me. I do care. ginnie

Well, lucky for me it is legal where I live.

I've read some more about it.
I think it may work a bit like this:
MJ can make you more relaxed -> less stress -> good for mg
MJ lessens cramps caused by mestinon -> you can take more mestinon
MJ lessens pain -> pain eats your energy -> you have more energy left
So.... Yeah, but thats just my simple thought

But I think the direct effect on our muscles is relaxation... And that's what worries me, I guess we're "relaxed" enough.
But I still think Im going to try it, Ill keep you informed

someone i know has mg and smokes mj everyday and he says it helps in almost everyway. the physical relaxing of your muscles is a good thing for mg since your immune system is creating chemicals to react with the actylcholine that is created for any muscle use. it helps with any of the gi problems with mestinon. it also regulates your appetite and sleep schedule if ur having problems with prednizone. one of the only downsides is the relative strain it puts on your lungs. i hope this helps

Would it hurt your lungs if you used a vaporizer?

i wouldnt say hurt but theres still a definite fatigue....definitely the lesser of the two evils

I have tried it and it amazes me. It relieves my pain and all discomfort, my vision and what really blows me away is that I have more muscle strength! I can walk where moments before taking it, I could not. I've been in a months long flare (mine last from 3-7 months!), part of which I have to use my hands to move my leg a couple of inches, or to put it on a flat pillow, and after taking it, I am able to move it myself.

It helps the breathlessness, too. Though I'd recommend using a long water pipe or vaporizer so it's easy on the lungs.

Sadly, I live in a state where it's not legal, so I can't take it. It's a shame, because it helps just everything! I was scared to death to try it the times that I did, (I tried it at age 53!), but I was desperate. I researched it out the whazoo, and found it clashes with no meds and basically there's no downside except the whopper of it being illegal.

So, back I go to being on a ton of highly dangerous meds that just aren't working anymore. Blah.
I just hope that someday soon it'll be legal so we all can get some relief!

Very interesting topic
 

First of all, I live in a "legal" state.

A few years ago, while trying to reduce prednisone dosage, I suffered from intense and I mean INTENSE muscle and joint pain. Did I mention the pain was INTENSE?????

I was visiting at a friend's home and her husband asked me how I was doing and I told him that I felt so bad that I was wishing I could get some pot and see if it would help with the pain from the prednisone withdrawal.

LOL - he said he could get me some - really soon - if I wanted some. I declined because I was unsure of how it might affect my breathing.

Fast forward about a year ago. Friends (different ones) were visiting and again, I just kind of wished out loud about trying MJ to see if it would help with my MG. My friend's hubby told me of a doc I could go to and get a medical card for MJ. Medical marijuana is legal now in California. This doc is about 4 hours from where I live....... I never made that trip to that doc.

My relatively stable MG has recently exacerbated - unusually hot and humid here in California - and lots of intense emotional stress - two people very close to me have died recently. Again, trying to reduce the $#@! prednisone dosage and it has not been fun. Frankly, it has been the PITS !

I do believe that I am going to talk to my neuro - who has been wonderful and quite open-minded about my MG treatment = about the possibility of medical marijuana.

At this point, I am willing to try anything to get off this stupid prednisone completely (still on Cellcept and of course, mestinon). So many side-effects now from long-term use. And who knows what is going on with my body that haven't even manifested??????:mad:

Hmmmmmmm.........

If my neuro doesn't want to write a prescription for MJ (marijuana) - I can always contact one of my friends' (mentioned above) husbands !!!! :)

I'll let the group know what happens.....

Smoked it rarely in my late teens, early twenties. I'm now 52 and gave it a try again. First of all it is a lot stronger these days. I'm 15 years into my MG journey and it didn't help or hurt my symptoms, however, I still had fun time! Everyone is different, be careful. I'm in no hurry to try it again for no other reason that I chose not to.