New Experience
Yesterday I was getting my IVIG and met a lady who was getting hers also. She also has MG. It was sorta nice to chat in person with someone who has experienced the same things. We had a long chat about treatments and various problems we have had. It really makes you feel that you are not alone. One of the nurses set up the meeting because they aren’t allowed to disclose other patient’s diseases. If you ever get the chance to do this I highly recommend it.
Mike |
I also met a man while we we're both having IVIG that has MG, him and I are 2 of the 3 people in our town that have MG, it's so rare that it is nice to meet someone who has been thought the same issues and understands what you are talking about.
he is a ex paramedic and is making sure that our local EMR people and stars teams understand MG and what needs to be done in case of crisis. |
I too have met several people with mg while getting ivig. It was great to talk face to face with someone who faces the same problems I do at times and we also able to share websites and other info. Bless the good nurses!
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The infusion center I go to now has no other Mg ,e but the center i went to before did.
But they seperated us on purpose, I don't know why? scrubbs |
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I’m jealous!! I don’t have one close by. I had one about 30 minutes away in Charlotte but disbanded due to lack of members.
Mike |
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