I am new to this support group - Puerto Rico
 

Hola,

I live in Puerto Rico. I started my MG after I had the H1N1 in 2009. Took a while to figure it out because the symptoms had been appearing slowly. I also started to have lung problems after the swine flu. Now I have Pulmonary Fibrosis and MG. I was reading in another site how many medicines and antibiotics that we shouldnt take because makes your muscles weaker. I didnt know that I shouldnt take Magnesium, and I was taking Mag every day. Now I am not sure about Neurontin and Clonopin. I realized that the pain in my body every time I am in the hospital is because of the antibiotics. Now, I have to watch, all the meds. Anyone knows about Neurontin and Clonopin? If is ok to take them?

How many of you feel depress with the illness? I am not coping well with all this. The mix of Fibrosis and MG is a bad situation...Plus every time that I get a new symptom or double vision or blury isnt a good day. :(

I took clonopin for a while, and I think it made me worse.

Hello! Welcome! I´m from Europe. Loved PUERTO RICO when I was there :) Hope u get lots of answers to your question and also hope you feel better by being on this forum.....

Hi, and welcome. I got MG after H1N1 in 2009 also. Actually, I never quite got the flu--I was taking care of my five children who had it, and I started to catch it--I felt deep body aches for a few days--and then got better. It was then that I had my first MG symptoms.

Looking back, though, I think I had some very mild MG symptoms for about six months before that. That whole summer, I was going to be very early and sleeping deeply for twelve hours. I think it's likely that I already had MG, but that the H1N1 made it worse.

Abby

I,m also new to the group
 

BUT IVE HAD MYASTHENIA FOR 4 YEARS THOU MY NEURO DOESNT THINK I HAVE IT
I SEEM SUCH A ODD BALL I GO TO A LOCAL GROUP IN LINCS ENGLAND AND THAT HAS BEEN MAGIC I HAVE HAD A NEW Dr in jan 2012 who has helped and i alsp have parathryiod raised calcium in my blood i,m thinking that has been helping me in some way thou i,m not at all sure of it ?
:winky:

About H1N1 and MG
 

Stellatum,

I started a support group in facebook and the first story was about this man that after having H1N1 he started all the MG symptoms. I have read before somewhere...that if you get real strong virus can wake up something you had hidding in your body. I had the H1N1 with body aches, lots..lots, fever, cough and real bad mouth taste that wouldnt let me eat. The cough became a pneumonia pretty quick, I know it cause I could hardly talk. That's when I realized how good was to have a phone with text.

I am very concerned about the medicines. I take quiet a few because since the hospital I started strong tremors. When they are 'unknown' they call them Essential Tremors. I get the for several reasons, one because of my lungs some or the majority of the smells affected me and I start shaking, then I do get tremors if I am in a line waiting or forcing my body, or sometimes even sleeping I start tremors. Tremors make me anscious because I have no control. For them during the day if I have them I take Ativan, and to sleep I take Klonopin (clonopin). I have other medications but I think I will add them in a whole new subject.

Going back to H1N1 I wonder how many had the FLU H1N1 then got sick...seems like it was a trigger.
:confused: