Living with Arachoid Cyst and ON
 

Hello my name is Heather ** I live in Upstate New York. I was diagnosed with an arachnoid cyst Feb 2011 and had a crainoptmy fenestration in May of 2011. The surgery was a success in maintaing the cyst size. It has return back to presurgery size but my ns believes it is still stable. I am willing to provide as much information to anyone who needs it also have a lot of resources if anyone is needing it. I inturn am seeking help. I January 2012 I had a siezure and while I was in the hospital I received my first injection for (or to see if I had) occipital neuraglia. I do. The injection only helped for about 3 weeks. I have been battling with waiting to see if the pain was from the cyst returning or if it turely was ON. Since it has been long enough my ns is certain it is ON although my last injection provided little to no relief so I am going for a consult to discuss a ON stimulator trial done. I really am wondering what to expect from the trial and if it works what to expect from the surgery. Being that I've been through an 8 hrs full open brain surgery I trust my neurosurgeon completely with my life. Just want to be prepared. Hope to get to know lots of you.

Nice to meet you!!
 

Heather,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Looks like you have been wondering around. Check into the following there should be someone there to help you out.

Occipital Neuralgia and other Cranial Neuralgias:
http://neurotalk.psychcentral.com/forum105.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


:hug:

Thank you
 

Thanks! Seems like a great place :) I saw my pain specialist today he has approved to do the on stimulator. We are just currently waiting for insurance to approve it but he feels this wont be an issue due to my surgical past. He said it maybe in as soon as next week :)

Hello Heather!
 

Welcome aboard! :hug:

You've come to a wonderful place of support and understanding! So many caring souls here :)

Make yourself right at home. You'll find lots of good information. Just holler if you need help in finding your way around or have any questions.

It's great to have you!

Rae
:grouphug: