Maybe over a year with TN, no help though?
 

hello, I have been involved on this forum for a while now, but never noticed there was a forum for TN. I'm 19 and I believe that I've been suffering from neuralgia since I was 18, although I have never seen a doctor for it.

I have a high pain tolerance so when my attacks are at their worst, I do heat therapy and take paracetamol (which does nothing), usually sob with pain and hope that I will be able to sleep it out. It usually lasts over 5 hours at a time and then leaves a residual pain.

I really wasn't aware that it is actually a condition that people do live with. I honestly just accepted the severity of the pain, even though I have been close to vomiting from it. Over the course of the last year they've been slowly growing less frequent though, down to only once or twice a month. But the pain is truly the worst pain a person could imagine, it's hard to describe.

Sometimes during an attack, I can feel certain nerves in my face pulsating with pain, either the side of my nose or in my gums. The last time this happened would be within the last fortnight. I have just never thought to actually go to a doctor about it. I honestly don't like complaining much about pain, my friends and family don't know I go through this. I usually keep quiet when it happens.

I've dealt with it so long already though and it's becoming less frequent. Maybe the nerve is healing? Could it go away on its own? Can I ask people on this forum if this sounds similar to what you all experience? I seem to have maxillary TN from wisdom teeth removal.

Thanks so much for reading, :)

I don't really know if this is TN. It isn't like what I have experienced, but some others here may have an experienced something like that.

I'm shocked though that you would suffer such agony and not go to a doctor for it! No one should put up with suffering if there is any way not to! And some kinds of things (maybe not this, but many things) will get worse and harder to treat if we don't treat them quickly. Please be kind and caring to yourself and don't suffer in silence. I'm glad it seems to be getting better, but that doesn't mean it can't get worse sometime. If you are prepared for it - knowing what it is and what to do for it - you will be better able to avoid suffering.

Here's hoping for pain free days!

Wow, you really need to see a doctor to help you sort this out. I have felt the nerves in my face pulsing with pain, but so far its only when I have a migraine. It seems the migraines aggravate all the nerves in close proximity and I suffer for days and weeks with the after effects. I have both classic and atypical TN and I do experience quite an array of different pains. You've mentioned that you feel throbbing in your gums. Have you seen a dentist to rule out any tooth issues? If not, you might want to see one. Also, start with your GP and see what he suggests regarding other doctors. Neurologists treat TN and can look for other causes of this kind of pain. Keep us posted about what you learn and good luck and low pain wishes for you.

First off,, nobody's pain feels the same,,it's such an individualized disorder...

There are times when it's bad that I can feel each throb and times when the pain is sharp and striking..
Although I have ATN/AD my pain,,right now,, is centering in my teeth, gums and roof of my mouth,,,,it's different for all of us....

Get to an MD now! Do not put it off...if this is TN and it sounds probable,, getting on meds early can help you control the pain that you're having...many people can stay on meds for many years at low doses and be very well controlled,,,but you have to take charge of your own health.

There is always a possibility that it will lessen,,,truth is it will probably get better and worse as time goes on. I think that's true for many of us,,sometimes it's the season, or the cold/warm depending,,,but it is controllable and liveable if you get the right help....

See your MD and then try to get an evaluation by a Neurologist,,,if this is TN you want to get help now,,,

Let us know what happens,,,we are all with you