New member - question
 

Hi ... Pam here.... Very ill and very depressed. Living 5 mos on the dark in a basement...Lyme+....treatment -> drug reaction -> skin burnt and 100% photosensitivity....presents as skin prickling and tingling no rash and only occassional redness with exposures....also progressed to some weird autonomic dysfunctions with BP and thirst and urination if get direct UV ...sunlight.
No diagnosis ... 25+MDS....ALOT of ridicule and suggestions for psych..
Question: I think I have small fiber peripheral neuropathy..on your intro page to join this group there was mention of a supplement/ regime for curing this condition.... I can't find the thread... It said something about the third sticky entry....where is that info.???? Thanks, p

Welcome to NeuroTalk:

I am a bit confused about your post. Are you saying you have LYME and have had antibiotics for this long term, and now have photosensitivity reactions in your skin?

Or are you having UV reactions with NO drug treatments?
UV intolerance can point to porphyria. There are several forms of this, some genetic and some acquired. It has to be tested for in a special way and many doctors don't understand it at all.

Secondly if you want the links to Wing42's protocol that helped him with PN here they are:

http://neurotalk.psychcentral.com/post9580-18.html
http://neurotalk.psychcentral.com/post9583-19.html
http://neurotalk.psychcentral.com/post9586-20.html
Keep in mind that this is what HE found helpful for himself.
There is NO ONE protocol that will work for each individual with
PN... people vary, and have different genetics and chemistries.

You really should post on our PN forum and others can try too help you to with your questions. Please try to be as detailed as possible.
http://neurotalk.psychcentral.com/forum20.html

There are many causes and triggers for neuropathy, many are in the environment, some are drugs, or vaccines. Some are actual diseases that cause neuropathy as a secondary problem, and some are hereditary.