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-   -   Antibodies and confusion (https://www.neurotalk.org/autoimmune-diseases/177789-antibodies-confusion.html)

MKLIRA 10-10-2012 11:05 AM

Antibodies and confusion
 
Hello,

we have an 11 year old son. In 2008 he was tested for several things. He was diagnosed with hoshimotos thyroiditis. He has has a consistent high t4, tested positive for anti-tpo (level <1000), thyroglobulin antibodies (<1193), + ana, ana titer 1:160, + for immunoglobin a, positive for ach binding and modulating, positive for gad antibodies. He has no clinical signs or symptoms of myasthenia gravis, he sees a neurologist regularly as well as an endocronologist and will see a pediatric rhuematologist next week. Ophthamologist said he does not see signs of mg. I have doctors that wonder why there are so many antibodies and what they can and will do and doctors who say they are just there and don't mean anything

MKLIRA 10-10-2012 11:35 AM

Quote:

Originally Posted by MKLIRA (Post 921413)
Hello,

we have an 11 year old son. In 2008 he was tested for several things. He was diagnosed with hoshimotos thyroiditis. He has has a consistent high t4, tested positive for anti-tpo (level <1000), thyroglobulin antibodies (<1193), + ana, ana titer 1:160, + for immunoglobin a, positive for ach binding and modulating, positive for gad antibodies. He has no clinical signs or symptoms of myasthenia gravis, he sees a neurologist regularly as well as an endocronologist and will see a pediatric rhuematologist next week. Ophthamologist said he does not see signs of mg. I have doctors that wonder why there are so many antibodies and what they can and will do and doctors who say they are just there and don't mean anything

I should also add that 12 years ago my exhusband, our sons father, was diagnosed with non treatment responsive hoshimotos encephalitis and still suffers from the disease. He also had anti- TPO and TG antibodies both showing <5000, positive GAD and ANA ab and titers.

hesilverlining 10-15-2012 02:52 PM

wow - I never heard of a father/son HE situation
 
Quote:

Originally Posted by MKLIRA (Post 921417)
I should also add that 12 years ago my exhusband, our sons father, was diagnosed with non treatment responsive hoshimotos encephalitis and still suffers from the disease. He also had anti- TPO and TG antibodies both showing <5000, positive GAD and ANA ab and titers.

First, I am so sorry for what you and your family are going through. I have HE myself, *edit*Unfortunately, there seem to be a lot of pediatric cases of HE.

*edit*


Hang in there. The science is really starting to get somewhere with HE the last couple of years. There are studies coming out of Japan that hold promise for finding a valid, sure-fire test for HE although they will need a few years of testing to see if the science holds up in real life.

Peace be with you.


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