3 years and now Neuro thinks maybe Lupus?!!!
 

So, it's been 3 years since my last 2 (of several) concussions. I have gone through a lot of the ups and downs and am working hard on "acceptance" as well as coping skills to deal with symptoms.

I'm in the midst of applying for medical retirement/long term disability. My regular primary care dr has been wonderful and has recently completed the required forms. About 7 months ago she referred me to Neurologist for a final consult (I only saw the neurologist once previously just over 2 years ago - at that time she reported that I should make a full recovery).

So, finally saw the Neuro yesterday and she says that there is no way I have PCS/MTBI because I would no longer have symptoms. So, now she is sending me for blood work to check for a connective tissue disorder like Lupus. Ugh! I'm so worried this will cast doubt when my application is reviewed. Grrrrr - I do not want to be back at square 1! And I'm terrified that I will be without benefits and still unable to work!

Has anyone else experienced this "lupus suspicion"? :eek:

Thanks gang.

XSoccergal

Just refuse the tests. Tell your neurologist that you will only go ahead with them if you get a second agreeing opinion from an MD doctor. Your GP at least would have picked up any sign of lupus or connective tissue disorder (auto-immune disease affecting your whole body, not just your brain) if it was present and already ordered tests. You don't want to undergo unnecessary testing. You have a right to disagree.

Soccer,

The neuro is dead wrong when she said "she says that there is no way I have PCS/MTBI because I would no longer have symptoms" There is not valid medical support for such a statement.

I am 12 years since my last head injury. Three NeuroPsych Assessments show that my symptoms are unchanged. Have you had a NeuroPsych Assessment?

You might get some help by contacting the Ontario NeuroTrauma Foundation. They have established sound medical science about prolonged concussion/mTBI issues. Check out
www.onf.org and
http://www.mybrainmatters.ca/organis...uma-foundation

Please don't let this get you down.

As luduplo said, ask for a second consult with a neuro.

My best to you.