NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Really need some help on this!!! (https://www.neurotalk.org/myasthenia-gravis/178278-help.html)

Nervous1 10-17-2012 09:54 PM

Really need some help on this!!!
 
I recently received the results back from an MRI of my brain and a paraneoplastic panel that was sent to the Mayo clinic.
The MRI showed 3 - 4 tiny foci and the paraneoplastic panel shows a positive hit on Neuronal Acetylcholine Ganglionic Receptor Antibody (Alpha 3). .09 nmol/L

Some of this seems to point to dysautonomia or POTS or Guillain-Barre
Could this be MG?

Does anyone have any ideas of what this could be? Is there a connection between the MRI and the antibody?

I had someone who reads MRI results for the brain everyday say it is not uncommon for a person in their 40's to have some spots in white matter. You will have more as you age.
But, the antibody that I tested positive for is quite troubling.

Here are some of the symptoms I am experiencing
PN symptoms in hands and feet
Twitching all over my body
Fullness, ringing in ears - Tinnitus
Feet become cold and fullness is gone. Then after some time the bottom of feet will become bright red and toes may become purple.
Constipation (Bright red blood in stool)
Sometimes get dizzy when I stand up
Sometimes I become tired/lethargic suddenly w/out activity
Brain fog
Drymouth (Could it be the nortriptyline)
Flush face- red nose - ears red - (all are hot to touch) happens alot when I get upset
Sometimes have twitching around eyes - have has some around my face and all over my body but mostly in legs near calves
Urination flow start/stop, usually at night (Had this issue with Cymbalta - may be the nortriptyline)
Seems the only part of me that sweats now is the bottom of my feet
Hands become very cold and fingertips wrinkle - Fingernails have a light purple tint - Then hours later after being cold the hands will become bright red and very hot.

Thanks in advance...

southblues 10-18-2012 08:33 AM

I had a lot of those symptoms early on. According to the neurologist that I go to now, I have MG and my mestinon helps me. Last time anyone checked I was seronegative.

I think that you will have to continue with diagnostics. Has your doctor talked about MS? Also, can any medications that you are on cause neurological symptoms? I would sure insist on getting that bleeding checked out. It may be from the constipation, or it could be something else.

Most of us in this group have gotten so used to doctors running tests and passing us around and having no idea what was wrong that we take it all in stride now. I hope you get a diagnosis and are ok.


All times are GMT -5. The time now is 11:30 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.