Small fiber neuronopathy/ganglionopathy
 

Hi I'm new to the forum. Does anyone has the same diagnosis as me. How do you cope with electric shock pains :)

Hi Liz Have left a reply on your other post.......Marie

thanks marie

I've sent you a PM - let me know if you get it?

:)


QUOTE=villier;924392]Hi Liz Have left a reply on your other post.......Marie[/QUOTE]

Can small fibre neuropathy cause nerve pain in foot?
 

Can small fibre neuropathy cause your foot to have nerve involvement on the bottom and top and feel like walking on golf balls? It's also extremely painful -- gabapentin relieves the electric shocks, burning, cold feeling etc

Yes definitely, all the pain you describe is same as what I experience and is very disabling.

Glad to hear you get some relief with gabapentin. I get Ivig every 3 weeks that help.

Keep being positive, take one day at a time :)

Bradycardia ?
 

Hi! So glad to find a place where there are others dealing with the same thing.
I have a good dr., take Gabapentin & pyridostigmine, and SubQ-Ig 3 x wk. that seems to hold the wolves mostly at bay (terrible flu like immune reactions, worsening nerve damage) but not entirely.
Just saw my dr and felt let down for 1st time, as he was my hero for diagnosing me! This time tho, he wanted to pull me off the Ig, didn't do blood tests for liver function post lots of Meds, and the main reason for disappointment- dr seemed to say that my bradycardia, lung stress(feelings that it is hard to breathe in), and renewed bladder issues were , unlike what I understood, not because of the SFN. ? So, did he forget the ganglionopathy or should I see some other type of doctor to resolve the issues?