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-   -   I need answers (https://www.neurotalk.org/peripheral-neuropathy/178464-answers.html)

azcrum 10-21-2012 02:58 PM

I need answers
 
:(

I suffered a seizure a month ago and fell on my back. I do have disc problems in L2 thru L5 from aging degeneration. When I woke up both my legs were totally numb. When I sat up the feeling came back in my thighs but my calves and feet were partially numb. I went to the ER and they told me it was Sciatica. I've had this before and there is no way this is what I have. I have feeling in my calves and feet but just partially and the front of my calves have feeling. I can move toes on both feet but just alittle. I now have foot drop with both feet. I can walk with the use of a walker but it's scary because I can't move my feet. I don't have diabetes's and I am very thin. So far I've had one EMG but no word yet on the results. My doctor is about as talkative as a box of rocks. I just want to know if nerves grow back and will I ever walk again? I am so scared as I am only 53 and have two teenage kids who need me walking......HELP>>>>>

mrsD 10-21-2012 03:56 PM

Peripheral nerves (these are outside the CNS) do grow back...but it may take a while.

But if you damaged something in your spinal cord...that is the Central nervous system, and much more questionable.
If you have a serious compression of the nerves leaving the spine, and this is not released in some way, then the damage will not heal either.

We can't tell you on an internet board much more than this.

You will need conduction tests and more visualizing tests probably.

azcrum 10-22-2012 10:02 PM

Quote:

Originally Posted by mrsD (Post 924501)
Peripheral nerves (these are outside the CNS) do grow back...but it may take a while.

But if you damaged something in your spinal cord...that is the Central nervous system, and much more questionable.
If you have a serious compression of the nerves leaving the spine, and this is not released in some way, then the damage will not heal either.

We can't tell you on an internet board much more than this.

You will need conduction tests and more visualizing tests probably.






Thanks......I went to the Neuro today and also pain mgmt doc. The Pain Mgmt told me that the numbness was not due to my fall nor the seizure. He pretty much made me feel like I was faking it. I also had the EMG on my legs. No results yet. I fired both of them today. The Neuro doc is not a Neurologist but a D.O. And the pain doc was a total idiot. I am going to go to someone who actually know's what they are talking about. I got more useful info from an ER Nurse......

mrsD 10-22-2012 11:56 PM

When you see the new doctor, get both a B12 test and Vit D test.

Doctors commonly will say "normal" on the B12 when you are actually LOW because they still use outdated lab ranges.
So bring your results here. The new treatment protocols in US are a minimum of 400, and preferably higher.

Same with Vit D... doctors test and then use an ineffective D2 product, when you should use D3 OTC. It is maddening, but true.

This is the B12 thread:
http://neurotalk.psychcentral.com/thread85103.html

In Japan they had an epidemic in the 1970's of low B12 caused by a drug called Vioform (clioquinol).( Our FDA took it off the market then, so US didn't have this emergency.) Thousands of people were affected and ended up in wheelchairs, blind or dead. So Japan was the first country to be aggressive in B12 management.

azcrum 10-23-2012 02:52 PM

Quote:

Originally Posted by mrsD (Post 924929)
When you see the new doctor, get both a B12 test and Vit D test.

Doctors commonly will say "normal" on the B12 when you are actually LOW because they still use outdated lab ranges.
So bring your results here. The new treatment protocols in US are a minimum of 400, and preferably higher.

Same with Vit D... doctors test and then use an ineffective D2 product, when you should use D3 OTC. It is maddening, but true.



In Japan they had an epidemic in the 1970's of low B12 caused by a drug called Vioform (clioquinol).( Our FDA took it off the market then, so US didn't have this emergency.) Thousands of people were affected and ended up in wheelchairs, blind or dead. So Japan was the first country to be aggressive in B12 management.



I will do that. In reading about what I have I did see that it could be caused by a Vit B12 deficiency. I just started taking it. I don't eat right and that could be the problem. If it was a B12 def that is causing it I wonder how long it would take to reverse it? Thanks for all your advice. It's very much appreciated.

mrsD 10-23-2012 02:59 PM

It depends on how low you were to begin with.

If you had 800 for a reading before supplements, you would not
respond much to more B12.

If you were 200 or less? You might respond more quickly. Within a month.

Dose is also a factor. And type you take. Methylcobalamin is the best form to use orally. You have to take it on an empty stomach to insure it will be absorbed at all. 5mg a day would give faster results than 1mg a day.

ginnie 10-23-2012 03:08 PM

Hello Azcrum
 
Welcome to Neuro Talk. I am sorry to hear about the seizure. The pain can be from alot of different things. first thing, find a doctor who will listen to you. There is nothing worse than spending money on a physician, that blows you away. It leaves you sad and depressed. At 53, I know that is young to have this kind of trouble. You need some real investiongatial intervention, to find a cause so you can be helped. Your teens need you, but you need them too right now. None of this is fun. I was 54 when my own health failed and I found NT. You will make some friends here, and get some good suggestions. Keep in touch. Again welcome to this site, alot of compassionate people come here. ginnie:hug:


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