25 year old male. very scared.
 

Hi. I'm a 25 year old male. My symptoms started on 9-3-12 and started as tingling in the left foot and left arm. It then progressed into electrical shock sensations on the skin in different areas of my body. Then it turned into pain in my extremities, joints, fingers. My nerve conduction study showed neuropathy in the legs but i am convinced i have small fiber throughout my whole body since i feel the pain and electrical shocks everywhere. brain mri, neck mri, and bloodworks have all came back normal. I'm trying to convince my neuro to send me for a skin biopsy even though he says he doesnt think i need that yet. Someone please help me. I need someone to talk to about this horrible problem. email me at (please use forum contact methods)

re-scared
 

Mustang0227,
Take a deep breath. Not all neuropathies are serious, but they should be looked into. I do understand your fear. Two years ago, I sat down in a recliner, feel asleep for ten minutes, and awoke with complete paralysis of my left arm from the elbow down. I could feel, and knew what I wanted to do with the arm, and hand/fingers, but they were completely paralyzed. I went into a neurologist, who sent me to rehab, didn't seem concerned, but when I showed up at the physical therapist's office, she read the diagnosis, I almost flipped out. She said the neurologist's diagnosis was radial nerve palsy and I MIGHT be able to get some use back, if I got any back AT ALL! It would have meant the end of my career. Wiped out in ten minutes. 6 weeks later, movement began to return, and it is now normal.

Don't expect the worst, regardless of what is said. Take it day by day, and for your peace of mind, get a second opinion. You may have a large nerve that is effected, and since our smaller nerves branch off the larger ones, it can effect the messages the smaller nerves are getting.

You aren't being silly or paranoid in your fear. When things like that happen to us and we don't understand what is going on, its terrifying. Also, if you are in panic mode, you may get additional pain or tingling. Have you ever had someone jump out from behind a door and yell Boo!! when you weren't expecting it? It feels like a blast of shooting nerve stimulation all over the body.

Find out if there is a compassionte neurologist in your area that has good people skills and will take the time to explain what is happening to you. Having someone say, "well, you have a neuropathy" and not much else, it leaves you with a lot of fear and questions.

Let us know how things are going.

Sam

Hi & welcome. Im pretty new on here, but have very similar symptoms to you. Mine began in june this year, burning, tingling in both feet then pain as well. Electric shock pains in my legs. I have now started with numbness in my fingers. I have had my nerve conduction test, but no results yet. I am waiting to see my neuro in November.
Its scarey isnt it, not knowing whats wrong with you or how & if its going to progress.
Im finding it hard to deal with to be honest. Im a fitness instructor & cant work.
Hope you get sorted out :)

Hello Mustang
 

I want to say hello and welcome you to Neuro Talk. You can talk here, and people will try to help. You have every right to be afraid. Being young makes any neurological problems scarry, as you think it may last. These conditions have help. It is really important to find a doctor able to make a DX. Your doctor was wrong not to do the biopsy. It seems like you believe that physician has put you into a dead end. don't give up. Try to go to a teaching hospital in your area. I hope that folks will respond and give you some names. I do wish you all the best. There is help, but sometimes it takes some real effort to find the right kind of physician. ginnie:hug:

the neuro i have seems like he could care less what is wrong with me. but on the otherhand even tho hes getting ready to wash his hands with my case he did say he would send me to university of florida if these next 2 bloodworks he sent me for come back normal. the 2 bloodworks were spep and iep. the pain is getting harder and harder to tolerate and now 900mg of gabapentin does nothing for me. im in the orlando area. if you have any suggestions let me know or if u know of any good neuros in this area.

where in the midwest are you? i used to live in cleveland and wish i was still there because i probably would have gotten better treatment at the cleveland clinic. down here in florida it is really hard to find a good doctor. but in regards to the neuropathy most of my worry comes from the pain also. the more painful it gets the more i start worrying.

Cipro Induced Neuropathy - need advice.
 

What are my chances of healing from toxic neuropathy?

I have Peripheral Neuropathy from a prescribed, 21-day treatment of Ciprofloxacin (500 MG twice a day) back in June 2012 for a case of prostatis. After 3 weeks, I first noticed the pain and then I quickly stopped taking it after noticing very severe pains. Now, 3 months later – the 1st week of October, I still have frequent pains though they are far less painful.

At the time, I was taking Cipro I was also taking the NSAID Naproxen (1 pill per day and my 1 MG of Clonazapam twice a day). I have discovered afterward that taking NSAIDS and benzos such as Clonazapam/Klonapin while taking Cipro augments Cipro Toxicity. I have had many tests done – I do NOT have diabetes or MS. So this suggest further that my Neuropathy is from taking Cipro.

I had regularly drunk less/or about one 6 -pack of beer on the weekend – so alcoholism seems a very unlikely cause. Now, in October of this year, I still suffer from daily pains of burning, needle and pinpricks and cramps, especially in my feet, toes, and fingers. What has changed is that I no longer feel the hardcore stabbing pains in my toes or the prolonged cramps.

I even have days where I feel “Almost Normal”. Basically I’m afraid of what most Cipro poisoned people are of – that this pain will last for the rest of our lives. Still, I feel much better then I did 3 months ago, especially after taking the four vitamins I’ve been taking daily since august. (Vitamin C 120 mg, Omega 3 120 mg, Magnesium 250 mg and B-12 500 mcg). Please give me your opinion on my case, as I think it will help many others with similar circumstances.


Reply

Welcome to NeuroTalk:

Dr. Cohen has some suggestions on his website.
And there is this new article:
http://articles.mercola.com/sites/ar...t-Failure.aspx

Make sure your magnesium is not OXIDE form. Should be a chelate like glycinate, citrate, gluconate, or malate. Or SlowMag.

Also try not to strain any tendons, now. Tendon ruptures can happen anytime after stopping fluoroquinolones.

try WSN Nerve Support Formula. I've heard of people that got good results and thats what im going to start taking until i get a real diagnosis of whats wrong with me

Hi Mustang
 

I am sorry the pain is so Bad. You are in Florida. I go to a fantastic Neruologist. His name is Dr. Kevan Boyer, in Bradenton Florida. He not only is extremely intelligent, he has compassion. His nurse on the other hand, is crabby all the time. I am not sure of the protocal to get into seeing him, and if you need a doctors referral or not. It may be worth it to call his office to see how he does things. 941-750-0602. I also go to the best doctor I have ever met to deal with pain. Dr. Emese Simon On Robinhood lane in Sarasota. She is a physiatrist/ and a pain specialist. She has helped me alot, even though I don't have the same conditions as you do. Maybe it would be worth the drive to seek out these physicians. It is usually by word of mouth that you find the best doctors anyway. I hope that you can find a resolution. Nobody wants to suffer like that. I wish you all the best. ginnie:hug: