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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Worldwide Awareness Campaign (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/178711-worldwide-awareness-campaign.html)

Kevscar 10-24-2012 10:54 PM

Worldwide Awareness Campaign
 
I am working with a couple of American Sites to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness month in November.

Please spare 5 1/2 mins to watch this video but be aware you may
find some of the images disturbing.
If you are newly diagnosed I strongly suggest you do not watch it.
http://www.youtube.com/watch?v=MviVcjWZDts
For those of you whose families don't understand tell them you want them to watch so they can understand what you have to go through and what the possible future could be but don't warn them. If there attitude doesn't change afterward then you really are better off without them. You have another family on here who do understand. If ti does ask them to join your fight to make things better.

For those of you struggling to cope I have to cope without medication so fighting the UK Government for the last 2 years has given me a purpose a reason to carry on and I thought if I can fight them might as well take on the wholeworld. Anyone else up for a battle.

If you live in the UK please sign

http://epetitions.direct.gov.uk/petitions/31344

If you are willing to commit to spending 15mins a day for 4 weeks

then 15mins a week to help spread this then please say so below.

Kevscar 10-30-2012 03:19 AM

UPdate
So far 3 more US sites have agreed to join the Campaign 1 US Doctors A number of UK sufferers will be writing to their MP's and have signed the e-petition, an Italian osteopath and this morning a Chinese Doctor.
Waiting for replies from Australia, Canada, Sweden, Switzerland, France, Holland, Germany, Isreal and India
I really could use the help of some of you.

ANTHONY JOHN 10-30-2012 06:57 AM

good on you
 
Quote:

Originally Posted by Kevscar (Post 925647)
I am working with a couple of American Sites to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness month in November.

Please spare 5 1/2 mins to watch this video but be aware you may
find some of the images disturbing.
If you are newly diagnosed I strongly suggest you do not watch it.
http://www.youtube.com/watch?v=MviVcjWZDts
For those of you whose families don't understand tell them you want them to watch so they can understand what you have to go through and what the possible future could be but don't warn them. If there attitude doesn't change afterward then you really are better off without them. You have another family on here who do understand. If ti does ask them to join your fight to make things better.

For those of you struggling to cope I have to cope without medication so fighting the UK Government for the last 2 years has given me a purpose a reason to carry on and I thought if I can fight them might as well take on the wholeworld. Anyone else up for a battle.

If you live in the UK please sign

http://epetitions.direct.gov.uk/petitions/31344

If you are willing to commit to spending 15mins a day for 4 weeks

then 15mins a week to help spread this then please say so below.

well I was upset because truth hurts and there is not enough awareness.You know I saw countless doctors in France who didn't have a clue.I'm just sorry to say the music needs a little work,only had pain in my head when that was on.All joking aside I feel like taking up the battle in France,a challenge but i'm english and I love a challenge:it's got to be done as I know what a struggle it is for me.Keep up the good work!

Kevscar 10-30-2012 10:45 PM

Couldn.t afford to have the sound track done proffessionally so it had to be done with a lapel mike straight into my computer. My daughter makes her living as a singer. http://www.youtube.com/watch?v=QtNJOCyhZuw
It would be great if you could take on France do you have family friends back here, can you send it to them, askk them to sign the E-petition and send it to theirMP,s then pass it on to others asking them to do the same.

Kevscar 11-07-2012 11:13 AM

Well since starting the video has had 544 views, joined facebook and it's on 73 timelines there and with the help of another sufferer we have a causes page up with a petiton aimed at getting 100,000,000 signatures worldwide before next November.
5 US sites have joined the campaign as have 1 US and 1 Chinese Doctor sufferers in France Italy Canada and Australia have volunteered to spread the word and 6 brits are wrining to their MP,s
Could really do with some more of you joining in


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