where do I go from here??? RSD
 

After reading all you're posts I'm really worried.I been diagnosed after 31months
and I have no confidence with the medical system in France.The last doctor I saw diagnosed me but could not believe how many people I saw before.I feel like a guinea pig and fed up of going in and out of hospitals.I've stopped all my medication but I can't do much,a prisoner in my home.
Yes,life changing but not the end of the world.I've RSD in my right ankle and lower leg and haven't had much treatment as only just diagnosed but I think I came to terms with it early on.
Any ideas for treatment,I think I'm going to see a Neurologue (can't spell it)next.
Anyway keep fighting you lot!
Anthony John (English in France)Photo after 28months
P.S. just because people don't understand what your going through don't let it get you down,it could be worse the pain lets us know we're still alive

So sorry you're going through this hell. I can't speak for France's treatment for those with RSD but the US has some major issues too like being ill with this disease and going bankrupt also, very common here. If I were you I'd get my pain under control, the swelling looks bad, so you could ask about short term steroid use (short term). Not sure about RSD doctors in France but I know there are very good RSD doctors in Germany. You should be able to locate these doctors relatively easily. Many have been mentioned on this site and many other sites on the web. I recall one member of this site from Malta who made trips to Germany for treatments.

Cheers for that mate,will look into that and wish you all the best.

Anthony, "nigel ep3 05" is the name of the member who went to Germany. I posted one of his threads highlighted in blue at the bottom of this window. He went through hell like most with RSD but people react differently with this disease, for example what works well for you may not for my wife who has RSD. Germany seems to be the place where they take RSD very seriously. You've really got to do research and dig, get your ducks in order. If your companion can help you out the better. An advocate is the best thing that can happen to those with RSD. And I'm not kidding. Good Luck!!

http://neurotalk.psychcentral.com/sh...ighlight=Malta

thanks again Jimking
 

[QUOTE=Jimking;925847]Anthony, "nigel ep3 05" is the name of the member who went to Germany. I posted one of his threads highlighted in blue at the bottom of this window. He went through hell like most with RSD but people react differently with this disease, for example what works well for you may not for my wife who has RSD. Germany seems to be the place where they take RSD very seriously. You've really got to do research and dig, get your ducks in order. If your companion can help you out the better. An advocate is the best thing that can happen to those with RSD. And I'm not kidd

merci encore!Just read that,before this site I thought it was just me.Give my best to your wife she's lucky to have someone thoughtful like you.Will keep you posted about Germany as from France it's not that far it's just the money thing.

Look at Holland they seem to be the best in theworld where this is concerned, they have a group of 5 University Hospitals,1 Technical and some companies working together.

http://www.trendconsortium.nl/organistation

HI,

I am sorry for the frustration and pain your have experienced thus far. Please
keep in touch. You have connected to a site consisting of some very wonderful people. We consist of people with RSD, or whose friends or family
members are afflicted with RSD but we all share a hope and a desire to make
life better despite RSD. :hug:

Thankyou it's nice when people understand,It takes a bit of the weight off my shoulders.

I haven't suffered as long as some of the members here, but I can tell you that one of the most important things for you is to manage your pain. I also tried to go without any medications at one point but the pain (and swelling) just got out of control! All that terrible swelling you have, it's only making your pain worse so if you do anything with medications, I would suggest that you make those two your priorities. Try not to lose hope!

thanks for that but im fed up with all the medication,the pain is part of me,its not fair but life goes on.have you any suggestions for swelling medication?Im fed up of french doctors just trying things on me when they really have no idea.Ive actually left examinations in tears of pain!Now Ive been diagnosed I can tell them not to touch me.Anyway thanks and hope your well