Burning now everywhere???
 

You would think after 12 years I wouldn't have any more questions -- but lately my small fiber PN burning pain is also in my inner thighs and inner upper arms as well as the feet and hands. I am in a flare right now and have had a lot of stress lately, and it seems like the last couple of years when it is really bad it is so bad in these new places. I have been through days when I can't wear shoes, or use bed sheets -- and have gotten used to wearing very very soft baggy clothes for comfort. Anyone else dealing with burning pain in these areas?
Oh, I am diagnosed with glucose intolerance and I am taking Lyrica as well as Oxy for the pain. As well as taking handfuls of vitamins and getting B12 shots weekly. (even though my B12 is fine) I eat very little glutton and sugar - except when I am so very down that I can't seem to control myself :) what can I say - you understand.
Anyone dealing with pain in other places as time goes on? :grouphug:

Mine is hereditary neuropathy, but I did go through a period much as you describe for a month or so this spring. It largely subsided, but I did not think I would ever wear jeans again. I am more sensitive than before the attack, but nothing like as bad as it was, so perhaps you will improve. I have no idea what caused it.

Im so sorry for your pain.

I thought with glucose intolerance, once you eliminated it (or get it under control) the PN gets better?????

Thanks friends - yes, my pain in general has gotten better since I have changed my eating. But stress sure is my enemy - going through this tough time stirs everything up and I have noticed the last year or so when I am going though a flare up the pain is also in my inner thighs and inner arms as well as the hands and feet.
So yes, eating different has helped, but certainly not made it go away.

Stress has a way of making everything worse. :(

Have you tried Benfotiamine? It has been a miracle for my burning, even in flare ups I just take more of it and it is amazing for me, though I know not everyone is the same.

goodluck

Stacy - wow, I just looked up Benfotiamine (I had never heard of it) and it sounds like something that might really help me. I will give it a try! Is it one of those things that has to build up in your system or is it like an asprin that works as you take it?
Thanks for the help and understanding - I'm doing a bit better today :)

I noticed a huge difference in the first 24 hours of taking it. But I kept telling myself surely I am exagerating, it cant really be helping that fast. But every single day got better and better.

Since starting it, my burning is "controlled" with benfotiamine. Meaning, I started on 1 pill 4 times a day, mine were 80mg but they come in 150 i think but my local store only had the 80mg. Anyway that controlled it for a month, but now I take 2 of the 80mg pills 4 times a day.

If I am having a flare up, which for me usually happens after exercising or having to walk alot, then I will take an extra dose at onset of flareup.

It has been a true miracle for me and I pray to God, literally, that it continues to always work and not ever stop working.

p.s. I only use Dr's Best name brand.

Besides Benfotiamine...

Try eliminating all nightshade veggies from your diet.

Tomatoes and esp tomato sauces
Potatoes
Eggplant
chillis and peppers

Some people are very intolerant of these and get burning from
them. Spices like curry, cumin, hot sauces, jalopenos etc

All the fun stuff. :o:rolleyes:

what is nightshade veggies ???

I just listed them. It is a vegetable family with intolerances for many people. Solanine in particular in potatoes and some of the others, is thought to be cumulative.

You can Google Solanine as well.

You can Google "nightshade intolerance" and also search here for it.

I've posted many times about them.;)