Finding a doctor
 

Not sure if this is the correct place to ask this question... anyway, over the spring/summer I was in the hospital a bunch, had a ton of tests, have obvious issues on some test results... the hospital recommended I see a cardiologist, so I have been to one a few times, and have been to a regular GP.

Being a complex case, the local hospital did what was minimum required, and sent me home each time with little help or information on what is going on.
So the only other doctors I have seen are the recommended cardiologist and the GP. The cardiologist somewhat diagnosed me with autonomic dysfunction. While he explained what was going on in the cardiology part, he seems hesitant to use actual labels. I didn't tolerate medication, so treatment consists of just not doing the stuff that causes me problems. The GP has helped with some of the minor issues, and I like these two doctors, but I understand that I have probably reached the limit of what these doctors can help me with.
This leads to my question, what do I do next???? What type of doctor do I see???

That's a question the GP should help you with. Autonomic Dysfunction is a pretty broad term that could involve different medical disciplines, but it would seem a neurologist knowledgable about it would be a good place to start.

Doc

Hi
 

Will add just one other kind of doctor other than what doc smith said. A physiatrist. This special does treat for pain, but also treats the whole body on a cellular level. My physiatrist is treating for PN. You might want to google this special field and give it a try. I do wish you all the best. ginnie:hug:

Thanks

I was referred to a neurologist in the spring, but totally forgot to see this doctor. I will make a appointment.

I am a bit afraid of seeing to many specialists/doctors, because I am afraid of getting conflicting reports about what is going on, and being back at the beginning again! I really dont think a neurologist is going to be to helpful, but I will give it a try.

I think I am at the point that I need to see some sort of expert in the more rare conditions. I have had issues since birth, and received help as a kid, but never really got a proper diagnoses. As a adult, I have ignored the issues for ten years now for various reasons. I lived as normal life as possible up until things hit a critical point this year.
I seriously need some sort of doctor who can look at my life history and put the pieces of the puzzle together. I am not sure what type of doctor this would be?

Yeah, there's an old joke about that... :rolleyes:

But we all have to start someplace. I mentioned a neurologist because it's often a first stop after (or in getting) a DX of autonomic dysfunction. A neurologist may also be able to point you in the direction of who else you should see.

I've got several doctors (specialists) on my "team". It took some time to build the team, and they're not always right or in agreement (they're human, and a "diagnosis" is an educated guess), but they're doctors I trust and can communicate with, and IME that goes a long way in getting to the answers.

Doc

Hi Road racer
 

Doc was right. sometimes it takes time to find a "Team" that can work not just with you, but with each other. I keep a copy of all medical records, and I make sure each doctor (4) gets copies of all visits. Yep it is a pain in the butt to do, but we are all on the same page that way. ginnie:hug: