Small Fibre Neuropathy HELP PLEASE
 

Hi Everyone,

I have been looking through lots of posts and have been so inspired by all the help and support that has been given. So I thought I would try and post one too. I am 27 years old and have recently been told I have small fibre neuropathy. I have been having foot pain/problems for 18 months now and feel like my life is at a stand still. I dont know how to cope with the pain and discomfort I am in. I am now wating to see a neurologist but from what I have been reading I dont know how helpful that will be. My GP has given me amitriptyline which I take 40mg at night. I cannot work full time and currently work six hours a day and even that is such a struggle. I see a pysio twice a week just to be able to go to work. It sounds really bad but the only thing that helps with the pain is drinking! I try not to have to much but I know I am drinking way more than I should. I would just like to be able to live a bit again. For example go to see a movie on a weekend with out pain! I feel so alone and upset all the time and just dont know what to do. I now live in trainers so any footware advise would also be much appreciated along with any tips on how to reduce my pain/stiffness etc (i cant move my toes) please help!!

Welcome to NeuroTalk:

Have you been to a foot specialist for a full work up?

Have you had B12 tested? Do you know the numerical result?
Low levels of this are often called "normal"...so getting the result allows you to double check that oversight.

Can you tell us more about yourself? What was going on when this started? Is this only confined to the feet? Drugs you take, your activities, hobbies, trauma, etc.

Hi there and Welcome:

Who told you that you have small fiber neuropathy? Did you get a nerve conduction test? as well as the other tests? Do you have any conditions that you would care to share with us? Neuropathy is not fun, I know. But there are many different methods of relief. Some work better than others.

Do your feet burn? Any zips or zapping? My husband has had neuropathy for 20 years. Some days are better than others.

Oh another important thing is do you know your B-12 Level? You might haved a B-12 deficiency? Any recent blood work?

Did your podiatrist tell you that you have small fiber neuropathy?

The more info you can share, the more the others will chime in and give you great input.

Just know that you are not alone.

Take care, Melody

Nice to meet you!!
 

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

So sorry to hear what you are going through and come to a solution for your Neuropathy.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

:hug:

Welcome

So sorry you're having pain challenges

Not fun

I think a diary is a good idea.

Include meds, pain scale, complaints, foods,names and telephone numbers, activities, personal activities.

Take care and drink lots of water

Hi Guys,

Thanks for your replys!

I have had my b12 checked and was told it was fine, but I will have another loook to see exactly what level it was. I was told by a rheumatologist that I have it after a tempre test showed it. I had been under a nerologist before but he didnt find it as he performed a nerve conduction and EMG only. So I am now waiting to go back and see another neurologist. I think I have had most blood tests done, I dont know what they all were for but I have had a lot!

It all started nearly two years ago when I noticed my toes were very stiff, I also started getting bad toe cramps. I didnt think to much into it and had no other symtoms. Over the few months
my toes got worse and I was sent to a physio who said I had plantafaciitis. It had now been about 8 months since my symtoms started and alongside toe stiffness I began to feel like my foot muscles were weak, cold and numb I also noticed a few balance problems starting to evolve. Thats when I first saw the neurologist. The next person I saw was a podiatrist who told me I have very flat feet. He got me some orthtics made but they were just to painful and I couldnt wear them for more than 15 min at a time. After being to my GP about 30 times complaing they have now agreed to send me back to nerology again after acting on the advise of my rheumatologist. Now thats what I am waiting for.

My symtoms are so terrible now I feel like I have no life and would like to know how to manage it all. The symtoms I feel now are: stiffness in the toes and whole foot, weak like feeling in the feet, burning pain in both feet, blue toes after a warm shower, tight leg muscles, fatigue, depression( although I think this is due to being in pain) problems balancing. Feelings of cold feet which they seem to be all the time, tight fingers (so im guessing its spreading), lack of energy, slight twitching anywhere is my boady (mostly the feet) hight blood pressure, tingleing feet, sometimes when im cold my fingers shiveral and look like I have been in the bath to long. I think this seem to be most of them!

I only take amitriptyline and have recently been put on amlidopine.

Thanks for all your advise!

Hello KJB!
 

Welcome to NT! :hug:

You have come to a wonderful place full of caring support and understanding!

Neuropathy is a very frustrating condition. If you haven't already, please check out the Peripheral Neuropathy forum! It is LOADED with great information. Here's the shortcut link to take you there:

http://neurotalk.psychcentral.com/fo...sprune=-1&f=20

Please make yourself right at home, as this is a very down-to-earth atmosphere and people are easy to talk to.

Just holler if you have any questions or need help in finding your way around.

I hope you begin to get answers very soon!

It's great to have you!

Caring,
Rae
:grouphug:

Hi kjb85;

Yes i have it--- has your neuro got down to the root cause? There is a reason...thyroid,glucose pre-diabtes or post,sarcoidosis and other things. Mine after a skin biopsy I had many test ran --turned out was my thryoid. It took awhile to get thyroid in control with meds but once I did symptoms got 80 to 90% better and less frequent. Has anyone in your family been diagnosed? Let me know if you have any ?.:)

Hi there. Thanks so much for sharing all that with us. Perhaps I can help with the cramping in the toes and feet.

Tonight, (if you have Epsom salts in the house), pour a half cup in a basin big enough to put your feet in. Put in nice hot water (test with your wrist like you would do with a baby bottle). When you feel it's a nice warm temperature, stick your feet in the basin with the epsom salts. Soak for at least 20 minutes.

You see Epsom Salts contains magnesium sulfate and the pores on your feet are LARGE, and your body will absorb the magnesium and hopefully it will alleviate some of the cramping.

I have done this and continue to do so. And the feet feel so good afterwards.

Let me know if you will try this.

Take care,

Melody