|
New member needs help SCA
My son is 7, adopted internationally last year with a DX of CP. The geneticist does not think he has CP, instead he thinks he has spinal cerebeller ataxia. We have not tested yet. I am still in shock from the news.
His symptoms are, odd gait, slurred speech, poor eye tracking, drooling, tremors. After reading about SCA he does have most of the symptoms. We have no information about his biological family. The geneticist will be doing further testing obviously. I am looking for support, and information about SCA. Also any help on what else I can do besides testing? His MRI was perfect, and he has got a little better with him symptoms in the last year that we have had him. Anyone who has helpful information will be truly appreciated. Leslee |
Leslee,
:Wave-Hello:It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Click on the following forum, there you will find some assistance with fellow members here. Cerebral Palsy: http://neurotalk.psychcentral.com/forum52.html So sorry to hear what you are going through at this time. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: :hug: |
Hello Leslee!
Welcome to NT! :hug:
You've come to a great place for support and information. This is a community full of caring and understanding people, so make yourself right at home. Look thru the forums and post wherever you feel inclined. Holler if you have any questions or need help in finding your way around! It's great to have you here! Rae :grouphug: |
| All times are GMT -5. The time now is 08:13 PM. |
Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise v2.7.1 (Lite) -
vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.