NeuroTalk Support Groups - wondering if anyone else has porphyria

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wondering if anyone else has porphyria

My daughter has had variegated porphyria for a year now. She has become partially paralyzed because of not being diagnosised early on. Suffers alot of pain still.

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purplegirl1935,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

I see you have found the General Health Conditions & Rare Disorders, in there you will find some kind members to help you.

Please keep us up to date on your daughter's condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

:hug: