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NeverPainFree 12-08-2012 11:53 AM

I cannot find any help
 
Hi, My name is neverpainfree and boy does that fit. I have never joined a support group so I hope I do this right. I had surgery 8 years ago that left me with RSD and constant pain. My life well I haven't had one. My body even rejects all the meds they have tried to give me. I don't know what to do anymore.
:Sinking:

Mark56 12-08-2012 12:12 PM

Hi Never
 
Unresolved daunting horrific pain is surely overwhelming, and the one thing I have to offer given what you report is my willingness to pray. I hope that is OK with you.

There are hosts of folks here who will come alongside and offer help, support and caring to you in this awful situation. They should be along shortly......

In the meantime, do know I care deeply and am lifting up prayers,
Mark56:hug:

Alffe 12-08-2012 02:00 PM

Hi Never and welcome to the forum. Here is the link to our RSD forum..

http://neurotalk.psychcentral.com/forum21.html

I'm glad you've joined us. :grouphug:

Rrae 12-08-2012 02:10 PM

Hello NeverPainFree!
 
Welcome to NT! :hug:

You've found a wonderful place of support and understanding!
Make yourself right at home. You'll find NT to be a very down-to-earth atmosphere and people are easy to talk to.

Alffe has given you the link to the RSD forum. Please check it out! You'll be amazed to see that you certainly are not alone and the support there is great.

Just holler if you have any questions or need help in finding your way around
It's great to have you!

Rae
:grouphug:

ginnie 12-08-2012 03:31 PM

hello neverpainfree
 
Welcome to Neuro talk. This is the place to be for support. The RSD forum is the best, and you will make alot of friends. There is help for this, but it is hard to find the right kind of physician to treat you. I do wish you all the best, and less pain for this day. ginnie:hug:

MelodyL 12-08-2012 11:21 PM

Quote:

Originally Posted by NeverPainFree (Post 937889)
Hi, My name is neverpainfree and boy does that fit. I have never joined a support group so I hope I do this right. I had surgery 8 years ago that left me with RSD and constant pain. My life well I haven't had one. My body even rejects all the meds they have tried to give me. I don't know what to do anymore.
:Sinking:

Hi there. I am so sorry you are going through all this stuff. I'm glad you found the proper forum. Hopefully you will get some good input and get some relief. Might take some time. But just know you are in my prayers too.

Take care,

Melody

NeverPainFree 12-08-2012 11:29 PM

Quote:

Originally Posted by NeverPainFree (Post 937889)
Hi, My name is neverpainfree and boy does that fit. I have never joined a support group so I hope I do this right. I had surgery 8 years ago that left me with RSD and constant pain. My life well I haven't had one. My body even rejects all the meds they have tried to give me. I don't know what to do anymore.
:Sinking:

Thanks everyone I welcome the prayers and the support.

eva5667faliure 12-09-2012 12:33 AM

hello
as promised
someone who cares
and was diagnosed
with RSD this summer
there are more to follow
again welcome

Darlene 12-09-2012 01:15 AM

Nice to meet you!!
 

NeverPainFree,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


:hug:

NeverPainFree 12-09-2012 07:05 PM

I am going to see a new doctor in 2 weeks (i have lost count on how many I have seen). The rhematologists I have been seeing for past several years left the room on my last visit when I began to cry at the news he gave me that I also had fibro on top of the RSD. This is a very hard step because I may lose the only support I have due to the new laws that have been put in place in the state that I live in. I just pray I am not making another mistake. This is all my fault to begin with. If I had not agreed to the bladder surgery I wouldn't be in this mess. There I said it. The first time since this started.. This is all my fault. Not only have I suffered but my family has suffered to. I just don't want to mess up anymore.


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