Eyelid surgery?
 

Have any of you had eyelid surgery for your ptosis? My ophthalmologist said that I will probably have to have surgery at some point. I asked him if he could just get it over with, but he said that he doesn't want to do it until he sees how bad this whole thing is going to get.

What are they going to do for your eyelid during surgery?

kathie

If he does it, which is still in question, he will do something to tighten the muscle up.

Even when they are not terribly weak, they are a bit saggy. So when they are at their weakest, it is getting harder to see out. I think that he has mixed feelings about it. He said that doing surgery on a MG patient is like trying to hit a moving target. The deal is that for me to continue to function, I have to be able to see. So I guess that he is considering taking a tuck in my eyelids to tighten the muscles up.

My eyes are quite saggy also. Both uppers and one lower. I think I am getting to the point of needing the surgery too. My eye doctor mentioned it at my last annual check-up.

My mother had the surgery on both her lids, one at a time at an out-patient surgerical center and it went quite well but she did not have MG.

What type of anesthesia would they use?

kathie

I never thought i'd do that as I used to not have "hooded" eyes (there was a lot of space between my eyelashes area and my eyebrow.. ) however since day one when this hit me.. the pressure that I feel of my eyes, the tilting my head backwards to see, and weirdness I see when I look in the mirror, I have thought about eyelid surgery.. however I have always wondered this:
IF they cut out part of your eyelid/make it tighter, will they close?? I already have issues with good eye closure.. also on a good day when your eyes weren't saggy, would there be enough eyelid then? I'd love to look like my old self again!!! keep us updated!

I think that the risk of creating a closure problem is the worry.

In the meantime, you can give this a try: http://www.eyemagic.net/

Have you used these?

I wonder if this would work for the corners of my mouth. I have a permanent frown.:(

I think that my eye doctor would do surgery if he thought I was taping my lids up. This may be a GREAT idea.