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-   -   tirasemtiv (https://www.neurotalk.org/myasthenia-gravis/181535-tirasemtiv.html)

StephC 12-26-2012 03:28 PM

tirasemtiv
 
I am behind on my emails but saw I had received article about new drug on 11/26/12. (sort of like italian dessert maybe some sweet news for all of us!)

http://www.bizjournals.com/sanfranci...ravis-als.html

Anyone else hear anything about it?

southblues 12-26-2012 03:33 PM

I haven't heard of this before. It is good to know that somebody is doing something. Thanks for the link.

AnnieB3 12-27-2012 01:38 AM

Steph, Thanks for sharing that article.

I've heard of it but I'm very cautious about it. The therapy is directed at motor neurons (ALS) and has a "downhill" effect on the muscles. It's hard to say if all MGers would benefit or not.

The initial results are promising and it would be great if more MG drugs were available. I had hope for Monarsen too and that had a LOT of backing and orphan drug status. It's still not available.

Any progress is good.

Annie

southblues 12-27-2012 09:37 AM

Right. At least somebody is doing something.

Maiden8680 01-03-2013 10:32 PM

That's definitely a start!


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